FASDay – TODAY IS THE DAY!!!!!

Can’t do anything —- Sure you can!
Send this message on your mobile

TEXT TEN FOR FASD DAY
This message will save a baby’s life!!!
Alcohol use during pregnancy can cause brain damage, birth defects, premature birth, and death.
WWW.BABYBORNFREE.

COM
Prevent Fetal Alcohol Spectrum Disorders –
Pass this on to 10 people.

And if you can’t do that “Each one can reach one” tell one other person about FASD.

Amazon.com Widgets

#4 Days To FASDay – FREE STUFF Be a poster poster

Become a Poster Poster!

©http://www.fasstar.com/

Get your school involved this month… involve your health teachers… high schoolers give a presentations to your elementary and middle schools –

Print out some FREE – FASD Awareness posters and hang them up on local bulletin boards, at the store, the laundromat, churches, universities, etc. You might even get your local schools to post them.

Little One” everybody’s favorite poster

NOFAS Posters and Brochures

If you print these out yourself on photo paper at “best” resolution on your color printer they will have a high quality appearance. You can have large posters printed for just a few dollars at your local print or copy shop. Even one may be seen by hundreds of people.

PURCHASE A SET OF BOOKS FOR YOUR ELEMENTARY SCHOOL TO HELP EXPLAIN FETAL ALCOHOL SPECTRUM DISORDERS TO STUDENTS IN A KIND AND GENTLE WAY – Prevent Bully Behaviors against children with FASD this school years.


Click book to purchase and use $3.00 coupon code Direct links provided for discount – Just add coupon code JZLZLVT2 to order Nuzzle, My Invisible World, Braided Cord, Whitest Wall or Our FAScinating Journey – you can simply click special link for each book provided below. Any reviews or comments on our books are appreciated. Happy September 9 – for larger quantity please message me and I can get you a deal.

PLUS THIS IS FREE E-CURRICULUM FOR Elementary Schools From Chancer!!!!!



Speaking, workshops or wholesale books contact: www.betterendings.org or jodeekulp@gmail.com

$3.00 Gift for each book from the Kulp and Winokur Families to build awareness this month. Additional or classroom quantities please contact us:

NEW! 3rd Revision Our FAScinating Journey -Keys to Brain Potential Along the Path of Prenatal Brain Injury – (2012)https://www.createspace.com/3579462
The Whitest Wall (2012) – A Mystery novel
Braided Cord (2010) – Liz’s adult transition with FASD

#7 Days To FASDay – You only need one minute

More Ideas for Minute of Reflection


Everyone participating in FAS Day is invited to share in the “Minute of Reflection” 9:09 a.m. on September 9, as it goes around the world.

In this magical moment the ninth minute of the ninth hour of the ninth day of the ninth month we want to get out the message that in the nine months of pregnancy, while breastfeeding or planning to conceive, women should not drink alcohol.
In this minute, we also want the world to remember those millions of people around the world who are living with fetal alcohol disorders. If a large bell or carillon is not accessible or appropriate, participants can do many things to observe that special minute in accordance with their own cultural background or religious beliefs.

The Minute of Reflection symbolizes the worldwide circle of community which links all of us who care about FASD, all of us who are working towards prevention, all of us who are trying to help children and adults with fetal alcohol disorders reach their full potential. Here are nine more suggestions for observing the Minute of Reflection. If you have other ideas, please share them with us.

  • Alone or with others, sit outside quietly and listen to the birds, or the wind blowing through the trees, or water lapping against the shore of a river or lake. You may want to focus on the wonderful gifts and strengths of the person(s) with FASD in your life.
  • Say a prayer or recite a poem appropriate to your beliefs or culture.
  • Sing a song or hymn.
  • Listen to an excerpt of your favorite music. (Any suggestions?)
  • Play a musical instrument, alone, or with fellow musicians, or ring tiny bells and “triangles” as the children of Queen of Apostles School, Toledo, OH did at 9:09 a.m. on September 9, 1999.
  • Sit in a circle and share some pure spring water with people you care about.
  • Place a long-distance phone call to a special friend who is equally committed to the FASD issue: you could even make it a three-way or teleconference call.

You may find 9:09 a.m. inconvenient and may prefer to mark the Minute of Reflection at 9:09 p.m., and light a candle to symbolize both the flame of your love for individuals living with FASD, and your burning desire to eradicate this preventable birth defect.
Simple silence.
Each person with FASD is different, and those of us who love them respect their differences. Respecting each other while working together is what FASDay is about.

#24 Days To FASDay – Listen to persons with FASD

Listen to persons who have fetal alcohol – they have insight we can all use.

This is John Kellerman’s speech given on 09.09.09
Great job John!

My name is John Kellerman.I’m the drummer in the band at the 9:30 service at St. Paul’s church. I love playing the drums. That is one thing that is easy for me.

But many things are difficult for me, because I have Fetal Alcohol Syndrome.I have a hard time making friends. I don’t always remember social rules and I can be inappropriate sometimes, especially when my mom is not around.

The hard thing about having FAS is that sometimes I act like a little kid, sometimes I act like a teenager, and sometimes I act like an adult. The really hard part is that I can never control or predict what level I will be at any time.

That’s kind of scary for me, because I know what the rules are, I know I can get into trouble, but I break the rules anyway, like I’m on a train with no engineer and the brakes don’t work.

I depend on other people to help me stay on the right track. My mom helps me by making sure I am safe all the time, and by teaching me what is important.

She teaches me to be respectful, to ask for help, and to communicate my needs.She teaches me about the dangers of alcohol. She says we can celebrate without drinking, and we can have fun without alcohol. And that nobody ever died from not drinking!

Happy FASD Awareness Day, everyone!


(Watch Johnny’s speech on YouTube: www.youtube.com/trilevelman )

‎BETTER ENDINGS NEW BEGINNINGS GIFT TO COMMUNITY

$3.00 Off “EACH BOOK!” Coupon  

Direct links provided for discount – Just add coupon code 3579462 to order – you can simply click special link for each book provided below. Any reviews or comments on our books are appreciated. Happy September 9 – for larger quantity please email jodeekulp@gmail.com and I can get you a deal.

NEW! 3rd Revision Our FAScinating Journey -Keys to Brain Potential Along the Path of Prenatal Brain Injury – (2012)https://www.createspace.com/3579462

The Whitest Wall (2012) – A Mystery novel
https://www.createspace.com/3497641

Braided Cord (2010) – Liz’s adult transition with FASD
https://www.createspace.com/3436934


Online Manual – www.fasday.com
Seminar – Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)


Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder – Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com



#26 Days To FASDay – Free FASD videos


Special thank you to our New York team of Advocates who prepared this video and to all the children, teens and adults with Fetal Alcohol Spectrum Disorders (FASD) who offered their pictures to put a FACE on FAS.

Help us “Raise The Standard” for our next generation!

Person First Language from MOFAS – 
this will help you promote awareness honorably to all

Not only must we walk the walk – we must talk the talk.
Yes, person first language takes more space to write and more time to say, but the end result allows for respect in honoring the strengths and abilities of another person.

Watch the MOFAS tutorial and give it a go for all your FASD presentations.



Use Teresa Kellerman’s video

in your presentations on Fetal Alcohol to build awareness.
This is worth watching – very short

Want the facts about alcohol use during pregnancy?
Here they are.
All sources are cited at end of video.
More information available here: www.come-over.to/FASCRC

More videos you can use from YouTube
(search FASD or fetal alcohol on You Tube to review – NOFAS has an excellent new series)




Recovering Hope is an intimate and evocative video about the mothers and families of children who are affected by Fetal Alcohol Spectrum Disorders (FASD). The video, created for viewing by women in recovery and their counselors, is divided into to half-hour episodes to allow time for discussion within a treatment session.

Eight women tell poignant, memorable stories. They speak out about how alcohol use during pregnancy affected their children, how they are learning effective new ways to parent, and how they are recovering hope for the future. Six researchers and clinicians support these stories by explaining the physical, mental, behavioral and learning disabilities associated with FASD and discussing evaluation and intervention services

Need a speaker? Check out the http://www.nofas.org/ Resource Directory for US speakers

Online Manual – www.fasday.com
Seminar – Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)


Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder – Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com


#33 Days To FASDay – American Bar Association FASD Resolution


If Fetal Alcohol Spectrum Disorders affect your industry help prepare a resolution for next year….

The American Bar Association unanimously passed …

AMERICAN BAR ASSOCIATION

Co-Sponsors: ABA Commission on Youth at Risk, Criminal Justice Section, Commission on Disability Rights, Commission on Homelessness and Poverty, Death Penalty Representation Project, Health Law Section, Judicial Division, Alaska Bar Association, and the American Judicature Society

RESOLUTION APPROVED BY THE ABA HOUSE OF DELEGATES – AUGUST 7, 2012

RESOLUTION

RESOLVED, That the American Bar Association urges attorneys and judges, state, local, and specialty bar associations, and law school clinical programs to help identify and respond effectively to Fetal Alcohol Spectrum Disorders (FASD) in children and adults, through training to enhance awareness of FASD and its impact on individuals in the child welfare, juvenile justice, and adult criminal justice systems and the value of collaboration with medical, mental health, and disability experts.

FURTHER RESOLVED, That the American Bar Association urges the passage of laws, and adoption of policies at all levels of government, that acknowledge and treat the effects of prenatal alcohol exposure and better assist individuals with FASD.

READ FULL REPORT AT ABA

#38 Days To FASDay – FASDay Guide


Easy FASDAY Guide
ABCs

A. Agenda for the FAS Day Breakfast Premiere

We have mapped out a simple, informal breakfast premiere for any size group, which begins at 8:45 a.m. on September 9, and lasts between 1 ½ – 2 hours. It includes some of the suggestions in the longer “How-to-do FAS Day Manual,” which you can find on the Internet at www.fasday.com 

Your event should begin promptly at 8:50 a.m.,
so we suggest you invite your guests for 8:45.

Suggested agenda:
8:50 a.m. Opening Remarks
8:55 a.m. Reading of local FAS Day proclamation
9:00 a.m. Reading of ecumenical Invocation (optional)
9:09 a.m. “Minute of Reflection.”

Your group may want to participate in the International Bell Concordance, linking up with others who will be ringing bells, chimes and carillons nine times at 9:09 a.m. in time zones around the world. Or you may want a poem, prayer, song, or just a minute of simple silence.

9:10 a.m. Refreshments.

Participants serve themselves a drink and a snack at an informal buffet table, then…
9:20 a.m. Video Premiere.
Sit down to watch the new video. (Popcorn optional.)

Following video: brief washroom break.

9:50 a.m. Presentation.

Informal speaker or speakers plus (optional) brief musical entertainment – such as a local children’s choir or local musician – OR panel discussion.

Download these Presentation Notes prepared by Teresa Kellerman.

10:30 a.m. Poem. Program closes with reading of a brief poem, “The Integrity of Hope,” by Michael Kami, possibly by a birth mother or survivor of FAS. (Optional)

B. Buying the Videos

  • To obtain the 24-min. Canadian video, Different Directions: Understanding Fetal Alcohol Syndrome, check in with Pat Spadetto of Ontario’s North for the Children, $50 includes shipping and handling. The video will be provided free to all Ontario CAPC and Aboriginal Head Start sites. This honest and inspiring video looks at two children with FAS — one five-year-old girl, and one young adult man — and their remarkable mothers, one a birth mother, and one an adoptive mom. Pat can be reached by email: tbfnorth@onlink.net or by phone: Kirkland Lake (705) 567-5926, fax (705) 567-2466.
  • The 35-min. U.S. video is available for only $20 (US Dollars) plus $5 S&H. This video now comes with a free set of handouts and a free 8½ x 11 color glossy poster “101 Reasons” as seen here: http://come-over.to/FAS/littleone.htm. The video can be ordered here: http://come-over.to/FAS/store/fasvideo.htm.
  • For a double whammy, why not show BOTH videos?
  • If you want to join up online with international FAS Day activists, visit www.fasworld.com and join the FASDAY mail list.

c. CHECKLIST (download here)

#40 Days To FASDay – Press Releases – Get Latest Data


Begin to Prepare Your Media Release Ideas for International FASDay – Get your media strategy started 



Don’t forget your other public places to share

(Jeff Noble has some great ideas) at 

  • blogs 
  • Facebook
  • Pinterest
  • twitter
  • Google plus
  • community events calendar 
  • church bulletins
  • school and association newsletters 

Suggested Media Release for Canada (should fit on single page):

For Immediate ReleaseContact:
(contact person’s name)
(contact person’s phone number)
(use actual date)
(contact person’s e-mail address)
(Name of your organization)

Fights FAS: International Fetal Alcohol Syndrome Day Video Premiere, Sept. 9
“Our house was in turmoil from the time he got up until the time he fell asleep, probably about ten o’clock – and then I would crawl into bed, totally exhausted, and cry myself to sleep every night because I felt like such a failure,” says Guelph’s Chris Margetson, parent of a son with FAS, in a compelling new Ontario-produced video.
The 25-minute video, “Different Directions: Understanding Fetal Alcohol Syndrome,” will be offered, along with an informal breakfast, when (Name of your organization) marks International FAS Awareness Day on September 9 at 8:45 a.m., at (location), and observes the worldwide “Minute of Reflection” at 9:09 a.m.
“We’ll be joining parents and professionals around the world in building awareness about Fetal Alcohol Syndrome,” says (name and position of spokesperson). “On this second annual FAS Awareness Day, people from Nunavut to New Zealand will participate. On the ninth minute of the ninth hour of the ninth month, we ask the world to remember that during the nine months of pregnancy, a woman should not drink alcohol.”
(name of your city or town) will be among many Canadian communities to use FAS Day to launch the new video, produced by Ontario’s North for the Children and Toronto’s Breaking the Cycle with the assistance of Health Canada.
The video focuses on two children with FAS and their mothers: 5-year-old Brenda, and her adoptive mother, Kim Meawasige, both of aboriginal ancestry; and young adult Joe and his birth mother Chris Margetson, of non-native background. Both Meawasige and Margetson work with FAS professionally, and bring to their work compassionate understanding of the struggle faced daily by children with FAS – and their families.
In one of the more touching moments in the video, Meawasige, adoptive mother of four children with FAS/FAE, bursts into tears. “Knowing how many kids are lost, either killed or living on the street with FAS and FAE, it scares me…One of the reasons I adopted (my children) is because I know that …no matter how weird our family is, we’re family and we’ll be there for them.”
Following the screening of the video, (what else is on your program?) All are welcome. For more information, call (contact name and number).

Suggested Media Release for U.S. (should fit on single page):

For Immediate Release
Contact:
(contact person’s name)
(contact person’s phone number)
(use actual date)
(contact person’s e-mail address)
(Name of your organization)

Fights FAS: International Fetal Alcohol Syndrome Day Video Premiere, Sept. 9

The 35-minute video, “FAS: Everybody’s Baby” (that focuses on teenagers who struggle with the effects of alcohol in their lives) will be offered, along with an informal breakfast, when (Name of your organization) marks International FAS Awareness Day on September 9 at 8:45 a.m., at (location), and observes the worldwide “Minute of Reflection” at 9:09 a.m.
“We’ll be joining parents and professionals around the world in building awareness about Fetal Alcohol Syndrome,” says (name and position of spokesperson). “On this second annual FAS Awareness Day, people from Alaska to New Zealand will participate. On the ninth minute of the ninth hour of the ninth month, we ask the world to remember that during the nine months of pregnancy, a woman should not drink alcohol.”
(name of your city or town) will be among many U.S.communities to use FAS Day to launch the new video, produced by the U.S. Dept.of Education.
Promoting zero tolerance for alcohol, tobacco, and drugs during pregnancy, the video is particularly aimed at problem teenagers who are at risk for both unplanned pregnancy and substance abuse. The film concludes with a reflection from adolescents on what parenting is all about, how it begins in the womb, and the responsibilities of the mother and father. “It’s an excellent film for teenagers,” says Teresa Kellerman of Tucson’s FAS Community Resource Centre, “and it will make an impact on viewers of all ages.”
Following the screening of the video, (what else is on your program?) All are welcome. For more information, call (contact name and number).

#44 Days To FASDay – A FASWorld Fable


A FASWorld Fable

(To Share at Your FASDay Event from Bonnie and Teresa)


Once upon a time, not too very long ago, Beautiful Blue Butterfly Bonnie flew across the sunny skies from the Nippy North down to the Sultry South, where she met Tucson Turquoise Tutterfly Teresa. They spoke of their butterfly babies and tutterfly troubles, and wistfully whispered of all the other butterfly babies in the world who couldn’t fly because their baby butterfly wings could not develop enough for them to fly freely on their own. The baby butterflies were always flying into terrible trouble.

! ! ! ! ! Tutterfly Teresa told Butterfly Bonnie all she knew about broken baby butterflies and their booze-battered brains.

Tiger Butterfly – Book Two
Bootleg Brothers Series
Available September 2013

Butterfly Bonnie shared all she knew about the overwhelming ! obstacles that must be overcome by all the mamas and the papas and their blessed baby butterflies.
Together the two shared their worthy wisdom. They lamented at length.
Butterfly Bonnie said, “Let’s save all those baby butterflies!”
Tutterfly Teresa said, “How can we do that? We are only two burned out bedraggled butterflies. We cannot save the world.”
To which BB replied, “Oh, we may not save the whole wacky world, but we can save some of the suffering souls trapped with their tattered and torn, worn wings. I have my Big Brainy Butterfly Brian to help me, and Cute Little Clutterfly Colette! And back home in the Nippy North is Nifty Nutterfly Nancy.”
TT said, “Well then, that is five of us – ten wings in all. What kind of a flap can five FAS friends make?”
Butterfly Bonnie said, “Have you not heard?
‘The oscillation of butterfly wings in Brazil may set off storms in Texas.’ “
“Brazil?” exclaimed TT. “I know some terrific tot-tutors in Texas, but I don’t know any butterflies in Brazil.”
“Oh, but you will! You will! Brazil and beyond.” Butterfly Bonnie continued to cheerfully chatter. “If we mobilize and motivate all the other butterflies in the world, just think what storms we could set off! Not just in Texas, but in Tucson and Toledo and Toronto and Everywhere that our butterflies beat their beautiful wings! Why, we might even move mighty mountains.”
So Butterfly Bonnie flew back to the Nippy North and stirred up serious storms all over earth space.
And Tutterfly Teresa flew back to the internet and intermitently interrupted inertia all over cyberspace.
Before long there were hundreds of busy butterflies making wonderful waves of awareness, telling their true tales, procuring proper proclamations, mobilizing media, bringing bells a-ringing,
“Nine! Nine! Ninety-Nine!”

And so, air waves announced and reporters revered all the awesome events planned and produced proudly by those sixty successful blessed butterflies on that fine Fall day. Ripples reverberated across the peaceful planet, telling the truth about the broken baby butterflies. Beyond the barriers of ignorance and indifference, the message of mothers and fathers afar:
“Desist the destruction of the delicate development of those wee little wings of the babies we bear. Try not to trample those innocent individuals whose wings cannot wend their way so well. Listen and learn. Don’t forget and regret. Beware and take care!’
And they did!

The moral of the story is this…
Never underestimate the power of the pen, the wonders of the web, and the beating of butterfly wings in the wind. Especially esteem the miracles of mothers and daddies who love their little lassies and laddies above all on the earth in this fabulous family called FASWORLD.
And to think it all began with one Beautiful Blue Butterfly… Bonnie! Read thank you messages sent to Butterfly Bonnie Buxton here.

#47 Days To FASDay – Host a mini-event non-alcoholic drink ideas

Organize a Mind Mapping Meeting.

If you have community interest and commitment already and want to move forward, and want to do more than just a one-day media event, then you are ready to follow the Prince George’s Northern Family Health Society model for community action.

If this is too overwhelming, then stick to something simple and easy, like the last idea here:

Host a Mini FASD Awareness Campaign!
This is great for the office – yours or your doctor’s – or any reception area that will give you permission. Just a bowl of Snickers mini bars and some FASD Fact Cards are all you need. Details here.

Check out NON-ALCOHOLIC DRINK RECIPES

FEATURE SITE OF THE DAY – KENTUCKY www.kyfasd.org 

This set of words means different things to different people.

To a pregnant woman,
it means that she chooses not to drink for the health of her baby.
To a doctor,
it means sifting through information to come to a correct diagnosis.
To a teacher,
it means learning to look at behaviors in a different way.
To a parent or caregiver,
it means trying new things and reaching out for help.
To a couple planning a pregnancy,
it means thinking ahead and avoiding alcohol.
To a pregnant woman with alcoholism,
it means courage to ask for help.
To a community,
it means responding with compassion, understanding and new eyes.

  • Baby Love Activities  BRAND NEW: BABYLOVE PRESENTATION for middle / high school students! (Includes powerpoint with facilitator’s notes and two optional video links, and three optional handouts / activities.)                

  • Advocacy Guidebooks  These two advocacy guidebooks can be filled out by parents / caregivers, then given to new therapists, teachers, etc. (They are identical, except one references FASD, while the other only mentions “brain differences”.)


OTHER GREAT SITES

  • The Substance Abuse and Mental Health Service Administration funds the FASD Center for Excellence, a clearinghouse for FASD resources and materials: http://www.fasdcenter.samhsa.gov/index.cfm
  • The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for affected families and individuals:    http://www.nofas.org/


Online Manual – www.fasday.com
Seminar – Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)


Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder – Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com