True Commitment – Fetal Alcohol is NOT who I am!

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Liz Kulp founded the FaceBook Group for adults and teens living with the challenges of FASD. Her group is called Striving for the Best Ability – Living with FASD not letting it defeat me.

If you know a teen or adult who needs positive – faith based input – check her site out! I’ve learned so much from my daughter whose life is affected by Fetal Alcohol Spectrum Disorders (FASDs) — Author, Liz Kulp, celebrates life at age 27. She is a published author of two books and winner

Braided Cord Tough Times In and Out

  • Mom’s Choice Gold Award – Adult Non Fiction – Life Challenges
  • 2012 USA Best Books – Health -Recovery and Addictions.

Best I Can Be Living with FASD (Revised 2013!)

  • Mom’s Choice Gold Award – Best Contributing Young Author
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Congratulations Liz on Four Years of Sobriety and Five Years of Living Independently! You are achieving your dream of making a difference in your generation to prevent FASDs! Blessings on beginning the career of your dreams this year!
Mom’s Choice Gold Award – Non Fiction – Life Challenges

TO VISIT LIZ’S WEBSITES
 www.BraidedCord.net  or www.BetterEndings.org
TO ORDER HER BOOK  https://www.createspace.com/3436934
TO VISIT FASD BOOKSTORE www.fasdbookstore.com

To read more from Liz’s book click here

Committed to each other for a life
worth living – walking the road
of FASD together

True Commitment
(Poem circa 2008)
By Liz

Alas I sit,
glued to a place of undoing and unmaking
of all the mistakes I have achieved
or contemplated making.

Waiting for renewed independence.
Proving to you who I am
and who I can be
and who I shall become.

No longer broken, but bent
Bent upon making a difference
with different choices and
new becomings
Reframing my thoughts
and laying down my rebellion
to fight for a future
instead of wants I thought
I so needed but didn’t
An though committed by a decree
that states I am an “other”
in need ot care and watchful eyes

I have learned what commitment
truly is – that it is the love
of family who remains
hopeful and helpful
that it is the love of
my sweetheart who
stands true
that it is a belief in myself
that I can do and be better
and emerge from
a state run commitment
to a self formed commitment
of being true to myself
and all of you.

#13 Days To FASDay – $3 Coupon – Listen to persons with FASD

Braided Cord – Tough Times In and Out

by Liz Kulp

A story you won’t forget. Visit her website

Liz Kulp, winner of Gold Mom’s Choice – Life Challenged 2011 and Outstanding Young Contributor in 2009 for The Best I Can Be Living with Fetal Alcohol Syndrome or Effects offers readers a rare
“new” opportunity of understanding adult transition with FASD.
There is always a feeling of awe when you are handed the first copy of your book. I loved the look in Liz’s eyes when she held her new project. (click to order learn more)

Liz was diagnosed with fetal alcohol spectrum disorders (FASD) as a young teen. Knowing her challenges and understanding her strengths helped her graduate from public high school and strive to move on to independent adulthood like her peers. But, she soon learned that life within the context of a family that understood and helped her gain the desire for independence had not prepared her to live in a world filled with predators and abstract thinking. Liz unashamedly lets readers inside the hidden world of adult transition for many of our young people with FASD.

“Stunning. Absolutely stunning.”
– Deb Evensen, FASD Behavior Specialist, FASAlaska
“Wow Liz this is one fantastic book. I can’t tell you how impressed I am. This is a best seller.”
– Renae Sanford, FASD Educator and Family Support Person
“After reading Braided Cord Tough Times In and Out I wanted to shout out to all social workers, adoption workers, foster parents, and adoptive parents ‘You have to read this book!’”
– Ruth A. Rice, Mental Health Practioner, Birth Mom, Adoptive Mom
“Heart wrenching, yet inspiring! There is so much that Liz Kulp can teach about FASD because she has lived it. From her lowest lows to her highest highs, we need to listen to her song.”
– Victoria Deasey, M.S.Ed, Cert AVT, CED, Teacher/Therapist/Parent Coach/Consultant
“Once again, Liz and Jodee have handed us exactly the book we’ve been waiting for. Braided Cord is an unfinished story of resiliency, courage and love. Thank you for allowing us to be a part of your life as it continues to unfold. Your honesty is a light for the rest of us.”
– Laura Nagle, Bluegrass Prevention Center

Speaking, workshops or wholesale books contact: www.betterendings.org or jodeekulp@gmail.com
$3.00 Gift from Kulp Family for each book orders additional quantities please contact us:

Direct links provided for discount – Just add coupon code JZLZLVT2 to order – you can simply click special link for each book provided below. Any reviews or comments on our books are appreciated. Happy September 9 – for larger quantity please message me and I can get you a deal.


NEW! 3rd Revision Our FAScinating Journey -Keys to Brain Potential Along the Path of Prenatal Brain Injury – (2012)https://www.createspace.com/3579462

The Whitest Wall (2012) – A Mystery novel
https://www.createspace.com/3497641

Braided Cord (2010) – Liz’s adult transition with FASD
https://www.createspace.com/3436934

Translating the world for a person with fetal alcohol

BEING A “COGNITIVE” TRANSLATOR.

In an abstract world a brain that thinks concretely may need help with interpretation and by having a cognitive translator our daughter can avoid mistakes and frustration in professional meetings in finance, social welfare, medical, and the judicial process. When needed she enlists me as her cognitive translator and I attend the appointment or meeting to make sure the communication between the professional and my daughter is understood.

To translate I make myself an only when necessary piece of her conversations. I may bring a magazine to glance through to look busy or I may catch up on a text message. I make sure to give her the space she needs to manage herself and remain in charge. If she gives me a preset signal, I interject into conversation for clarification. After the end of the meeting I ask for a recap of next steps or meeting.  Cognitive translations provides safety to remain on course and navigate through complicated adult discussion, keep her trust in the professional and increase skills and knowledge.

When she trusts and feels safe she is able to manage more complex situations. With time and experience, she manages her life challenges.

While some professionals consider my attendance a hindrance to her progress I wonder how clearly they understand the brain and metabolic system of a person with fetal alcohol.

For example:

  • In a therapy session for anger management, a therapist described the range of emotions: “Emotions are like waves, there will be low times and high times and if you wait through a low time you can ride the wave up to a high time. Then you will ride the wave back down. Like this.” (Therapist demonstrated with her hand a waving motion.)  I remained silent, watching my daughter process what she heard. When we arrived in the car, I said, “Your therapist had a good idea today about managing anger, tell me about it.” She replied, “I don’t get it, why would she want me to ride in a wagon?”  

Why did this miscommunication occur? 

First, we live in Minnesota so she has no experiential frame of reference for a large wave. (Professionals must think what experience this person has that I can connect new learning to) Second, she took “wa” sound and assumed her auditory processing issues had confused her once again. “You can not ride a wave on a Minnesota lake. If you ride on it, could it be a “wagon?” 
How many times “What we say” is not “What is received?

  • At a job placement meeting, a counselor stated, “I am a realist, do you think senior citizens would like your hair?” “I am a realist, do you think senior citizen’s would like your clothes?” (And she continued with more questions beginning with “I am a realist”) When we reached the car, my daughter turned to me and said “Why would a Realtor care how I look for grandmas and grandpas. They like me just how I am.” I was glad she had missed the professionals point.
  • One adult I have translated for begins nodding her head when she “does not” understand. This provides two results – “The person explaining believes understanding has occurred and stops talking.” Another polite adult states, “Thank you so much for telling me that, now I understand.” Only later in the safety of her home do you realize the words understood were hot air.

As a cognitive translator, I do not consider myself an external brain any more than I would consider a seeing eye dog an external brain for a person who cannot see. 

My daughter’s brain is beautiful – very different from mine and very capable. In a world that has moved from agricultural to industrial to informational and now to communication we have left this population behind. I do not believe my daughter is a lesser person because of her challenges. She is a strong, dynamic adult with valuable insight into a world that often seems to talk too fast and too much.

Cognitive translation empowers versus de-powers.