Shouting out a special thank you to Dr. Jim Yurcek and his wife Ann Yurcek who stepped up to the plate to make this conference happen when the funding was removed. It was awesome.
- Loved how everyone in the audience worked together.
- Loved what Liz and Sam had to say.
Hope we impacted people with new ideas and strategies and visions for helping and understanding persons living with the challenges of fetal alcohol spectrum disorders #FASD.
It was a day well served – the road of seeing FASD now has visibility!
Thank you from the Kulp Clan – Let’s do this one again…
OR DO ANYTHING ELSE YOU WANT TO –
IT’S YOUR CHOICE –
Liz Kulp lives with the challenges of that choice and will for the rest of her life. She is the Mom’s Choice Award winning author of two books to help people understand fetal alcohol spectrum disorders from the inside out. The Best I Can Be – Living with FASD and Braided Cord – Tough Times In and Out.
My heart remains with the babies whose mothers listened to her advice.
The first of those babies will be born in May 2014.
As adults we live as active of life and more independently than many persons who share our secret. Oh and we’ve been down the path of experiences no parent wishes for their child. I know what it feels like to have your book published and win awards and get talked about. I am sure this has been quite a journey for Emily and her family—
I just hope her writing did not place other children on life path I endure.”
|Click Sam and my picture to
find my book on Amazon
I like Ed Riley’s statement to the Wall Street Journal
I find it amazing that the author wants to take on the responsibility of assuring so many women that it is ok to have “a glass of wine or so a day” while pregnant. She readily acknowledges that “all drinking isn’t created equal,” but fails to recognize that all women are not created equal. There are many factors that go into determining whether consumption of alcohol during pregnancy might have an impact on the developing fetus, besides the timing, amount, and pattern of consumption. Additional factors that influence the outcome relate to nutrition, age and one’s genetics. A recent study out of England (Lewis et al, 2012) on over 4000 children found that several genetic variants controlling alcohol metabolism were strongly related to lower IQ at age 8. Importantly, the effect on IQ was seen in the offspring of mothers who were consuming 1-6 units of alcohol per week. If you had these genetic variants, but abstained during pregnancy your child did not show an effect on IQ. A unit is probably a little less than the standard American drink, which brings up another issue. Just how big is that one or so glasses a day you are recommending? A standard drink of wine is 5 oz, but over-pouring is the norm thus underestimating the volume consumed. I for one believe that most women are probably ok with a glass of wine now and then during pregnancy, but I just can’t tell who those women are. Individual genetics, drinking habits, and other contributing factors limit the ability of science to make the assurances that Dr. Oster appears willing to endorse.
To find my books visit http://www.fasdbookstore.com
“Don’t use mostly, sometimes, maybe, perhaps—I won’t do that!”
This avoids giving me direction I can use. It keeps my brain on a fuzzy place like standing on a ball.”
- I do yes and no
- I do Tuesday at 3:00
- I do give me ten minutes of quiet time
- I do it will be finished at 5:00 pm
- I do true and false.
Don’t tell me what I can’t do
This empties my mind and the connections in my brain struggle to discover replacement thoughts
- Tell me what I can do.
- Give me choices
- Let me come up with choices before you tell me NO – “What else could we do?”
No takes away my ability to think. It puts my mind into emptiness without opportunity. Tell me what you need, want, desire and I will do my best to help.
Abstract thinking is like grabbing thoughts, ideas, and explanations, but when you look into your hands there’s nothing there.
You can’t have abstract ideas in your physical possession.
Concrete ideas you can see, touch, hold, show and prove!
“My green minivan has a flat tire” – shows a picture, can be touched and if you look at the tire you can prove it is flat. That is a concrete statement vs “The vehicle won’t go.”
|Drove away in a car
Said or told
Bus, car, train, canoe
|Girl who stole my purse
- Be aware that persons with organic brain injury may have trouble filtering out distractions, fighting their impulses and make poor decisions sometimes by obeying “EXACTLY WHAT YOU SAID!“
- Be aware of what you are saying – all the time.
- Understand that if they are doing something that you have expressly told them not to – go back over your instruction and see if they have translated what you said literally.
When using sensory words – does the person understand the word you may use to describe it?
- Taste – bland, biting, bitter, brackish, briny, metallic, minty, nutty, peppery, salty, sour, spicy, sweet, tainted, yeasty – (if you use the word biting will it make sense?)
- Touch – cold, hot, warm, tickly, harsh, gritty, grainy, clammy, chilly, tingle, sting, smooth, rough, numb, knobby, harsh, sticky, slithering, jarring – (if you use the word jarring will the person understand?)
- Sound – hiss, whisper, whine, screech, snap, swish, splash, creak, crack, gurgle, murmur, hum, cry, giggle, chime, clatter, clink, crackle, buzz, blare, bellow (if you use the word bellow will it get confused with below?)
- Sight – flash, flicker, glare, glitter, muddy, spark, foggy, bright, cloudy, glow, shimmer, chalky, dappled, inky.
Idioms are abstract and you can get some wonderful or deadly surprises. An idiom is a word or phrase that is not taken literally, like “bought the farm” has nothing to do with purchasing real estate, but refers to dying.
|Abstract Idiom||Actual Meaning||Concrete Misunderstanding|
|A chip on your shoulder||You think you know a lot||What? There are no chips (potato) on my shoulder|
|You’re high as a kite||You are drunk or on drugs or very very happy||What? I am standing on the floor.|
|Out of the blue||Something unexpected happened||Huh?|
Step safely on the stones of concrete language to allow the person to “gain the real meaning of what you are trying to communicate” and not get the wrong idea.
When your brain works well in concrete language and struggles in abstraction, simple listening becomes overwhelming. Conversations become one-sided. Progress forward ceases. By keeping your conversations in concrete language you allows the person to remained engaged in your conversation.
Avoid the dangerous ground of abstract language with it’s grey areas of misinterpretation and misunderstanding.
Visit our website www.betterendings.org for more ideas.
Learn about LiveAbilities.
We are expressing a voice for the voiceless
to encourage building of better baby brains
|CLICK TO PURCHASE|
Liz Kulp founded the FaceBook Group for adults and teens living with the challenges of FASD. Her group is called Striving for the Best Ability – Living with FASD not letting it defeat me.
If you know a teen or adult who needs positive – faith based input – check her site out! I’ve learned so much from my daughter whose life is affected by Fetal Alcohol Spectrum Disorders (FASDs) — Author, Liz Kulp, celebrates life at age 27. She is a published author of two books and winner
Braided Cord Tough Times In and Out
- Mom’s Choice Gold Award – Adult Non Fiction – Life Challenges
- 2012 USA Best Books – Health -Recovery and Addictions.
Best I Can Be Living with FASD (Revised 2013!)
- Mom’s Choice Gold Award – Best Contributing Young Author
|CLICK TO PURCHASE|
Congratulations Liz on Four Years of Sobriety and Five Years of Living Independently! You are achieving your dream of making a difference in your generation to prevent FASDs! Blessings on beginning the career of your dreams this year!
Mom’s Choice Gold Award – Non Fiction – Life Challenges
TO VISIT LIZ’S WEBSITES
www.BraidedCord.net or www.BetterEndings.org
TO ORDER HER BOOK https://www.createspace.com/3436934
TO VISIT FASD BOOKSTORE www.fasdbookstore.com
|Committed to each other for a life
worth living – walking the road
of FASD together
(Poem circa 2008)
Alas I sit,
glued to a place of undoing and unmaking
of all the mistakes I have achieved
or contemplated making.
Waiting for renewed independence.
Proving to you who I am
and who I can be
and who I shall become.
No longer broken, but bent
Bent upon making a difference
with different choices and
Reframing my thoughts
and laying down my rebellion
to fight for a future
instead of wants I thought
I so needed but didn’t
An though committed by a decree
that states I am an “other”
in need ot care and watchful eyes
I have learned what commitment
truly is – that it is the love
of family who remains
hopeful and helpful
that it is the love of
my sweetheart who
that it is a belief in myself
that I can do and be better
and emerge from
a state run commitment
to a self formed commitment
of being true to myself
and all of you.
New Release! More Resources!
At thirteen, Liz Kulp wanted to let people know what was inside her brain and what made her life so difficult. She hoped by sharing her life other families and children would have more opportunities for success. Fourteen years later, Liz, now an incredible adult revised this beloved title and added her adult perspective of living with FASD in hopes that families and children living with these challenges could better prepare for the future.
In this new revision, she has been joined by other adults, who she refers to as FASD Life Experts and they have added additional wisdom. We love the new resources and are excited about this new direction.
Braided Cord – Tough Times In and Out
by Liz Kulp
A story you won’t forget. Visit her website
Liz was diagnosed with fetal alcohol spectrum disorders (FASD) as a young teen. Knowing her challenges and understanding her strengths helped her graduate from public high school and strive to move on to independent adulthood like her peers. But, she soon learned that life within the context of a family that understood and helped her gain the desire for independence had not prepared her to live in a world filled with predators and abstract thinking. Liz unashamedly lets readers inside the hidden world of adult transition for many of our young people with FASD.
Speaking, workshops or wholesale books contact: www.betterendings.org or firstname.lastname@example.org
$3.00 Gift from Kulp Family for each book orders additional quantities please contact us:
Direct links provided for discount – Just add coupon code JZLZLVT2 to order – you can simply click special link for each book provided below. Any reviews or comments on our books are appreciated. Happy September 9 – for larger quantity please message me and I can get you a deal.
The Whitest Wall (2012) – A Mystery novel
Braided Cord (2010) – Liz’s adult transition with FASD
09.09 Reason to Take a Stand to
Build Better Baby Brains
On the ninth minute of the ninth hour of the ninth day of the ninth month, we ask the world to remember that during the nine months of pregnancy, alcohol can be very dangerous to the baby. We also ask the world to remember the millions of people worldwide who will struggle lifelong with intellectual disabilities caused by prenatal alcohol.
What the members of FASworld want:
We want to make the world aware that no amount of alcohol in pregnancy is safe for the baby.
We want to make the world aware of the millions of people internationally who can never live normally, because their brains – and often their bodies – have been damaged by alcohol before they were born.
We want our governments to invest in information programs; rehabilitation facilities for women with alcohol addiction problems, and their families; adequate diagnostic facilities, special education, and other support for individuals with FAS, and their families.
Volunteers from around the world work together year-round to build awareness. Each year, on September 9, we observe International FAS Awareness Day (FASDay) with its “Minute of Reflection” at 9:09 a.m.
Each year our memberships grows and we are represented by volunteers in Canada, the U.S., England, Scotland, Northern Ireland, Ireland, Germany, France, Poland, South Africa, Australia, New Zealand, Uruguay, Bermuda and Costa Rica participated and new communities join in every year — be sure to let us know when your community holds a FASDay event.
What can Only One person do?
From Deb Fjeld – a mom of four children with multiple complex issues and webweaver of www.toolboxparent.com
I was feeling frustrated the other day when I was listening to myself complain about the recent funding cuts going through our state. I realized that I have become so obsessed with trying to find grant moneys for programs that I have lost my focus like I had lost my paying job.
I had the “I’m Only One Person” Syndrome.
I felt that if I don’t find grant money for programs, that nothing good can happen and I can’t make a difference.
Then, I re-framed my thoughts. (My favorite thing to do next rationalization)
What can one person do to help a family who is struggling?
One person can (without a lot of money or no money which we sometime have):
- be a mentor for a child
- offer support to another parent who is struggling
- create a blog to support other parents
- phone a friend who has tough kids and say I appreciate what you do
- operate a web site to help others
- bring a meal to a sick friend
- offer respite for a family who needs a break (even an hour makes a difference!)
- pray for another who needs help
- join a list serve and share ideas
- call a church, school, government center to ring some bells on 09.09
- get a little assembly together on your county courthouse on 09.09 to talk about FASD
- hold a pregnant pause event at a local restaurant, hotel or bar
- send an encouraging email to one, or all on your email list
- write a book!
- invite a few girlfriends out for coffee and relax!
- read our articles on http://www.toolboxparent.com/
- join a disccussion, ask a question, post a great idea to help professionals and parents of complex kids and intense adults at http://toolboxparent.ning.com/
- write a review for an author who raises tough kids – your input really counts
- HAVE FUN FUN FUN – pay attention to the little miracles every day
- start a 501c3 (then you add a few board members and maybe get a grant)
These are things that don’t need a grant.
These are things that make an actual difference in another’s life, without costing any money.
I have noticed, though, that I receive much more in return than the effort I gave out.
What else can one person do to help another?? Any ideas we would love your comments.
Deb Fjeld and Jodee Kulp
Look what three parents with a single idea pulled off ten years ag0 and it is still continuing to ring our warnings.
FASDay 1999 began in Auckland, New Zealand, where “Minute of Reflection” bells rang at 9:09 a.m., at Mt. Albert Methodist church. Then it moved to Adelaide, Australia, and then to South Africa, where at 9:09 a.m., Cape Town volunteers gathered to hear the War Memorial Carillon that rang when Nelson Mandela was released from prison. Volunteers in Italy, Germany and Sweden held events — and then FAS Day crossed the Atlantic. Volunteers staged events and bells and carillons rang across Canada and the U.S. The westernmost activity was the community breakfast on the tiny island of Kitkatla, B.C., near the Queen Charlotte Islands, where the village bell rang at 9:09 a.m. followed by prayers in the native tongue by village elders. We missed a few international time zones.
We did it all on $100 in donations, plus thousands of hours of volunteer labor.
It was a labor of love and passionate commitment. We generated as much media attention as a million-dollar public relations campaign, and we made many new friends and supporters in the process. Many women of childbearing age learned for the first time that no amount of alcohol in pregnancy is safe.
All of us knew that in one magic minute, we really did begin to change the world.
What can one person do to fight FASD?”
You’d be surprised — if he or she is working with a world community of people equally committed to eliminating this tragic and totally preventable disorder!
Host your own drop in event.
offer coffee and cookies on FASD Awareness Day
Simply send out an invite to your clients, friends and family.
FASD Awareness Day –
Owen Sound Drop In Event
Organization: Children’s Aid Society
Wednesday, September 9
Children’s Aid Society
1290 3rd Ave E,
2:00 – 4:30 pm
Fetal Alcohol Spectrum Disorder is the most common birth defect in the industrialized world causing permanent damage to the developing brain of one in every one hundred babies born in North America.Join us for this drop-in event, which will include refreshments, networking, education, awareness, and advocacy for those with FASD.
For more information contact: