#FASD Conference Success – Thank You Dr. Jim and #AnnYurcek

Success means a quiet voice and truthful statements
2014 BROCHURE2
FLYER - FASD CONFERENCE-FINAL

Shouting out a special thank you to Dr. Jim Yurcek and his wife Ann Yurcek who stepped up to the plate to make this conference happen when the funding was removed. It was awesome.

  • Loved how everyone in the audience worked together.
  • Loved what Liz and Sam had to say.

 

Hope we impacted people with new ideas and strategies and visions for helping and understanding persons living with the challenges of fetal alcohol spectrum disorders #FASD.

It was a day well served – the road of seeing FASD now has visibility!

Thank you from the Kulp Clan – Let’s do this one again…

 

 

Micro publisher scores four national books awards on Fetal Alcohol

Today was one of those wild even though you have adults with FASD day… appointments and work and all those other things that play into it… At the neurologist/physical therapist I was reading the newspaper – something I rarely do and they were announcing all the Minnesota Book winners and how powerful of writing state we have and how each of the houses won in their excellence and I thought I wish we could do that… and I read…. what good authors we have here and…. Oh I sure wish we could make some inroads… feels like we have icy roads… more helter-skelter of a day… and more demands and spinning out… how come we can’t seem to make progress with FASD… this day feels like a tornado in glue….

WELL GUESS WHAT – this little tiny itsy bitsy micro publishers with a niche in fetal alcohol spectrum disorders came home to —

1. GOLD! Mom’s Choice – Parenting Books – Special & Exceptional Needs
Our FAScinating Journey – Keys To Brain Potential Along the Path of Prenatal Brain Injury (3rd Revisions) from by Jodee Kulp

2. WINNER! The 2012 USA Best Book Awards! – Young Adult – Fiction
The Whitest Wall by Jodee Kulp

3. FINALIST! The 2012 USA Best Book Awards! – Animals/Novelty
Nuzzle – Love Between a Boy and His Service Dog by Donnie Winokur

4. FINALIST! The 2012 USA Best Book Awards! – Health: Addiction & Recovery
Braided Cord – Tough Times In and Out by Liz Kulp

Now if only someone could help me get the word out in a MUCH MUCH MUCH bigger way

… I am humbled

#30 Days To FASDay – #FASD Twitter Party

FASD Awareness Day 2011 was a a terrific initial success for increasing FASD-specific tweets and increasing awareness on Twitter; we’re doing it again in 2012 to have even more participation!

@FASDElephant (Twitter username of Michael Harris) is starting early and again encouraging and hosting a worldwide #FASD #TwitterParty on September 9th to make #FASD a worldwide Twitter trending topic and increase FASD awareness across the world.

See last year’s video (2012 video will be made in summer 2012):

1. Register for the Event: Register on either Facebook (to be set up in summer 2012) or Eventbrite, then I will send you an email and Tweet reminder on September 9th.
2. Share this invitation: Tweet or “Like” it from the “Share this!” section above.
3. Visit Tweet4FASD.com: Find sample tweet ideas, more info about the 2012 #FASD Awareness Day #TwitterParty, video tutorials on setting up and using Twitter, and links for more about FASD.
4. Tweet #FASD messages with 120 characters or less: No matter the time, no matter your location… Tweet several times using the hashtag #FASD on September 9th so it will show up as a trend on Twitter. (BTW, Tweets 120 characters or less are easy to re-tweet.)
5. Document your FASD Awareness Day event: Send Tweets and Tweetpics from your event on September 9th – Include the hashtag #FASD.
6. Retweet other #FASD Tweets you receive: Keep the momentum going!

A. #FASD Awareness Day! Alcohol+Pregnancy=Lifetime of Problems. Please don’t drink when pregnant. B. #FASD is preventable! Alcohol in pregnancy can cause brain damage. Please don’t drink while pregnant.
C. @FASDElephant I’m honoring #FASD Awareness Day in [city/country] by [tell me something about your event].

Follow FASDElephant on Twitter

Event registration for 2012 #FASD Awareness Day #TwitterParty Hosted by @FASDElephant powered by Eventbrite

 

Tell the “Twitterverse” that FASD is 100% preventable on September 9, 2012!


What if each of us chose to reach out to another person with a disability.

An kindness of simple things will make a HUGE difference in the daily life of a person with an FASD disability.

A ride to the store for groceries
Coffee once a month at the local cafe
Sitting on a porch swing.
Helping to organize a room
An invitation to dinner
Helping with a project
Going to county services as a friend or brain coach

We would love to hear ideas on how you can “be a friend” to a person with fetal alcohol spectrum disorders (FASD)

For t-shirts, hats and other gear visit www.cafepress.com/fetalalcohol

How to help children with fetal alcohol understand and think

The Kulp family home schooled for five years and over that time we learned to meet the children we schooled at the level of thinking they were capable of at the moment. Depending on rest, stress, diet and daily schedule abilities fluctuated. We have provided the Hierarchy of Thinking Skills by Benjamin Blom to help you work, live, laugh and love your child. Armed with this information you may be able to take an assignment or project and adapt it to the child’s success. This developmental chart and over 30 others are available in our 3rd Edition of Our FAScinating Journey – Keys to Brain Potential Along the Path of Prenatal Brain Injury by Jodee Kulp



Blom’s Taxonomy Hierarchy of Thinking Skills (Benjamin Blom)

LOWERLEVELTHINKING
1. Knowledge — To remember information you have learned. Remembering facts, terms, definitions, concepts, principles.
  • recognition
  • recall

What?Who?  list, name, define,describe, order, recite, list, record, recall, label, reproduce, match, repeat, underline, state, recognize, relate.  
By  books, facts, events, TV, radio, newspapers, magazines, films, tapes, CD’s and movies
2. Comprehension — to understand the meaning of things learned.
  • interpretation
  • translation  
  • extrapolation

Explain. How?Why? interpret, summarize, give examples, predict, translate, arrange, locate, indicate, describe, restate, sort, classify, translate, express, discuss, extrapolate.
By  d
iagrams, puzzles, logs. stories, games, journal, reports, task cards, illustrations, drawings

3. Application — Using information in a new way to solve a problem.
  • implication

Apply compute, solve, modify, construct, sketch, practice, illustrate, measure, schedule, choose, use, demonstrate, prepare, operate.
By diagrams, model illustrations, photographs, sculpture, model stories, diorama, scrapbook, puzzles, mobile, collection, map

HIGHER LEVELTHINKING
4. Analysis — to break down knowledge into parts and show relationships among those parts. Physical, historical, functional descriptions 
  • elements
  • relationship
  • organization

Examine. How?What? analyze, diagram, question, appraise, test, calculate, discriminate, distinguish, categorize, compare, criticize, contrast, experiment, inventory.
By
graphs, charts, surveys, events, diagrams, objects, reports, commercials, puzzles, questionnaires.
5. Synthesis — to produce something original from elements and components of previous knowledge. To bring together.
  • unique communicate
  • plan or set 
  • abstract relations 

Organize. Bring togetherarrange, design, prepare, assemble, formulate, propose, collect, manage, set up, compose, synthesize, create, plan, write, construct, modify, conduct.
By stories, news, articles, poems, games, magazines, TVshows, cartoons, recipes, plays, songs, machines, puppet shows, hypothesis, advertisements
6. Evaluation — to make judgments based on pre-established criteria.
  • internal evidence (logical accuracy, consistency)
  • external evidence (application of external criteria)

 Support. Why?Why not?  appraise, estimate, select, argue, evaluate, assess, judge, value, attack, predict, score, compare, rate, defend.
Bypolls, group letters, surveys, recommendations, evaluations, panels, simulations, discussions, news items, court trials.

Service Dog "Wonder Dog" for Fetal Alcohol Wins International Literary Award

Nuzzle has now received recognition from six prestigious book/audio awards

We will share more about Chancer’s recognition meanwhile….

TO PURCHASE BOOK DIRECT FROM AUTHOR


This book is based on a the true story of a boy born with fetal alcohol related problems, but it is written in a very adorable way. The book is also available on CD and the character’s voices are done to perfection. The story could have been dark and sad, but instead is written in a wonderful, easy to understand, uplifting, empowering way, especially for children. Personally I found it interesting to learn about the world of service dogs and the tremendous amount of effort that goes into preparing the dog, the child and the family. I have a whole new understanding, as do my three children. This is the second book that we have read by Winokur, and hopefully there will soon be a third.”

CONTINUE TO HELP US VOTE FOR CHANCER – ONE VOTE PER DAY THROUGH END OF JUNE – We appreciate getting our children’t voices heard. I voted for Chancer Winokur Animal Humane Society “HERO DOG” award – consider joining me to build awareness of FASDs

We are honored to have Chancer nominated in the Animal Humane Society Hero Dog Contest. Chancer has become our “SpokesDOG” for fetal alcohol awareness. We are allowed to vote once a day – let’s see if we can make some noise.




VOTE EACH DAY TO GET OUR WOOF OUT
http://www.herodogawards.org/vote/?nominee=82443978

– Jodee


Seven Easy Steps to Teach a Child with Fetal Alcohol Spectrum Disorders

What Mak taught me to teach persons with learning differences new skills.
Give permission to be frustrated. This is actually a pre-step and don’t forget at each “new” step to say “Tell me if you get frustrated and we can stop.” Remember, when you are guiding a person with brain injury to learn something new – respecting the personhood it very important! Keep instruction statements and steps to complete less than 12 words! If learning is not taking place break the task down into smaller steps.

  1. REVIEW – CHECK IT OUT!  We review the options of how to teach so we have a backup plan. We make the initial calls, visit the site and discover the details. This helps avoid failure in the first teaching/learning session. 
  2. WATCH “Watch me do this.” We tell Liz what she is going to learn and take her through the process to accomplish the task. In this first step she is the observant participant with us – we do not require learning. She asks questions and we answer as simply as we can. We may show, guide, read, point out, role model, dramatize, and laugh alot! We make this fun. We also may share some of the funny things that happened to us when we tried this the first time.
  3. WATCH – EXPERIENCE “Watch me and you can help.” We repeat the experience with her contributing pieces of the learned task. We involve her in the task in fun ways. We allow her to help us in the final pieces – by allowing a person to complete the final step the person is successful in the process. 
  4. EXPERIENCE – WATCH “This time you can try it.” We repeat the experience with her contributing more pieces of the learned task and we begin to step away. We work together and this step may need to be repeated a number of time until person is secure and has the ah ha!
  5. EXPERIENCE – SHOW  “Wow, you can do it! Show me how.” She tells me what to do and I laugh and become a partner in “her” learning.
  6. SHOW – LET GO  “You can do it!. I don’t think you will need me much.” She shows me as I watch and then let go. This is her time to do it herself without help but encouragement. Provide time to think and move to the next step.
  7. I CAN DO IT!  She skillfully and a bit fearfully completes the process, while I sit in a parking lot waiting or stay close to the phone to guide. ‘I Can’, can take a while and when learning is mastered we move on to the Next Step in our adult journey.
  8. ”I DID IT!” At this point you may need to return to teaching and support if the person has a day that is very stressful, they are hungry, sick, cold, hot, tired, on new medication. If this learning experience needs to be repeated I recommend you go back to Step 3 and have a good time together. “Let’s work together today, I like working with you.”

Remember, it takes 8 healthy inputs to receive 1 healthy OUTPUT – most often we miss important steps in the teaching and learning becomes fraught with missing pieces and filled with frustration.