#24 Days To FASDay – Listen to persons with FASD

Listen to persons who have fetal alcohol – they have insight we can all use.

This is John Kellerman’s speech given on 09.09.09
Great job John!

My name is John Kellerman.I’m the drummer in the band at the 9:30 service at St. Paul’s church. I love playing the drums. That is one thing that is easy for me.

But many things are difficult for me, because I have Fetal Alcohol Syndrome.I have a hard time making friends. I don’t always remember social rules and I can be inappropriate sometimes, especially when my mom is not around.

The hard thing about having FAS is that sometimes I act like a little kid, sometimes I act like a teenager, and sometimes I act like an adult. The really hard part is that I can never control or predict what level I will be at any time.

That’s kind of scary for me, because I know what the rules are, I know I can get into trouble, but I break the rules anyway, like I’m on a train with no engineer and the brakes don’t work.

I depend on other people to help me stay on the right track. My mom helps me by making sure I am safe all the time, and by teaching me what is important.

She teaches me to be respectful, to ask for help, and to communicate my needs.She teaches me about the dangers of alcohol. She says we can celebrate without drinking, and we can have fun without alcohol. And that nobody ever died from not drinking!

Happy FASD Awareness Day, everyone!

(Watch Johnny’s speech on YouTube: www.youtube.com/trilevelman )


$3.00 Off “EACH BOOK!” Coupon  

Direct links provided for discount – Just add coupon code 3579462 to order – you can simply click special link for each book provided below. Any reviews or comments on our books are appreciated. Happy September 9 – for larger quantity please email jodeekulp@gmail.com and I can get you a deal.

NEW! 3rd Revision Our FAScinating Journey -Keys to Brain Potential Along the Path of Prenatal Brain Injury – (2012)https://www.createspace.com/3579462

The Whitest Wall (2012) – A Mystery novel

Braided Cord (2010) – Liz’s adult transition with FASD

Online Manual – www.fasday.com
Seminar – Or try our easy, effective, exciting 1½ hour program that walks you
 through the morning of Sept.9: http://www.come-over.to/FASDAY/ABCDEFG/ 
(material from 2002 has excellent ideas)

Follow us through the next 60 days and plan your local or personal project to build awareness of fetal alcohol spectrum disorder – Each One Can Reach One!

Need family support visit www.toolboxparent.com
Need ideas for adults living with challenges of FASD visit www.braidedcord.net
Need information on fetal alcohol spectrum disorders visit www.betterendings.org
Interested in service dog for FASD visit www.thechancerchronicles.com

The Million Mind March starts with a single step.

Daring to Live – He Won The Million Minds Race Without Ever Taking A Step

Jim Grimm never joined our Million Mind March, he died yesterday quietly in “his” home. He was 42 and he Dared to Live with Cerebral Palsy that captivated him to rejoice in a life few live so strongly. He never uttered a word, yet he profoundly and joyfully touched the lives of all who came to know him. He was an inspiration to all who met him.

Born with cerebral palsy and unable to communicate verbally or move of his own volition, Jim turned his severely isolating lifelong disability into a gift of connecting deeply with others. The community of Chisago Lakes rallied around the family while Jim was in preschool, little Jim went to school and graduated with his class in 1986. He was a friend to all. Independent and strong spirited, he moved into his “own” home as an adult and was surrounded by care givers who became his “Friends.” He climbed the first Liberty Ridge.

His Award Winning “The Heart’s Alphabet – Daring to live with Cerebral Palsy.” Won National Mom’s Choice Gold Award for Adult Memoirs. The Heart’s Alphabet is Jim’s self-told story, painstakingly spelled out, letter by letter, with the assistance of an interpreter is a tale of personal perseverance, a tribute to loving families, and-most of all-a testament to the possibilities that lie within each of us.

  • Jim ran the race of life wearing a wheelchair.
  • Jim taught life living independently hurdling barriers other placed before him.
  • Jim climbed Liberty Ridge – he scaled the impossible as a man
  • Jim spoke letter by letter with his tongue – his words and life live on in his book
  • Jim loved life, people, concerts, vacation, travel, sports & his dogs.

His dogs was how I was reunited with Jim last year. Jim was looking for a dog and he knew what “he” wanted. After visits with my large size puppies, he clicked with his tongue “No.” For Jim his No has always meant no, and his Yes has moved him forward. He never settled for I Can’t. For Jim has always been able to work with his family, love with his family, and do with his family and the community he became a part of – He expressed his needs – as a child and as a wholesome and loving man.

His parents, his sister and brother and the community he embraced can rejoice in a life lived with courage and strength. He won the race, he finished his life and I am sure on both feet this man raced into heaven – his job well done! For Jim death was his first step – and knowing him his body free he can now run and jump at last.

“If I rise on the wings of the dawn,
If I settle on the far side of the sea,
even there your hand will guide me.
Your right hand will hold me fast.”
Psalm 139:9

His website is http://theheartsalphabet.com/

May his family be blessed in their remembrances.