29 days of #FASD Love Bursts from Liz Kulp – Day 13

Happy Saturday – Love Burst from Liz
13_Love-FASD
I learned as a little child it was better to tell the truth. Mom and Dad had a “TRUTH TABLE” at our house and when I did something wrong they made it easy for me to tell the truth by having the truth table. All I needed to do was ask for a counsel and I could present my case and turn myself in. When I did that – they would ask me what I thought I should do about it. And that’s what I had to do. If they caught me not telling the truth I never liked the consequences – I would rather be able to learn to figure it out myself.
When I was 13 I wrote The Best I Can Be Living with FASD and there is more information in there to help you understand what I thought about it when I was younger.

#30 Days To FASDay – #FASD Twitter Party

FASD Awareness Day 2011 was a a terrific initial success for increasing FASD-specific tweets and increasing awareness on Twitter; we’re doing it again in 2012 to have even more participation!

@FASDElephant (Twitter username of Michael Harris) is starting early and again encouraging and hosting a worldwide #FASD #TwitterParty on September 9th to make #FASD a worldwide Twitter trending topic and increase FASD awareness across the world.

See last year’s video (2012 video will be made in summer 2012):

1. Register for the Event: Register on either Facebook (to be set up in summer 2012) or Eventbrite, then I will send you an email and Tweet reminder on September 9th.
2. Share this invitation: Tweet or “Like” it from the “Share this!” section above.
3. Visit Tweet4FASD.com: Find sample tweet ideas, more info about the 2012 #FASD Awareness Day #TwitterParty, video tutorials on setting up and using Twitter, and links for more about FASD.
4. Tweet #FASD messages with 120 characters or less: No matter the time, no matter your location… Tweet several times using the hashtag #FASD on September 9th so it will show up as a trend on Twitter. (BTW, Tweets 120 characters or less are easy to re-tweet.)
5. Document your FASD Awareness Day event: Send Tweets and Tweetpics from your event on September 9th – Include the hashtag #FASD.
6. Retweet other #FASD Tweets you receive: Keep the momentum going!

A. #FASD Awareness Day! Alcohol+Pregnancy=Lifetime of Problems. Please don’t drink when pregnant. B. #FASD is preventable! Alcohol in pregnancy can cause brain damage. Please don’t drink while pregnant.
C. @FASDElephant I’m honoring #FASD Awareness Day in [city/country] by [tell me something about your event].

Follow FASDElephant on Twitter

Event registration for 2012 #FASD Awareness Day #TwitterParty Hosted by @FASDElephant powered by Eventbrite

 

Tell the “Twitterverse” that FASD is 100% preventable on September 9, 2012!


What if each of us chose to reach out to another person with a disability.

An kindness of simple things will make a HUGE difference in the daily life of a person with an FASD disability.

A ride to the store for groceries
Coffee once a month at the local cafe
Sitting on a porch swing.
Helping to organize a room
An invitation to dinner
Helping with a project
Going to county services as a friend or brain coach

We would love to hear ideas on how you can “be a friend” to a person with fetal alcohol spectrum disorders (FASD)

For t-shirts, hats and other gear visit www.cafepress.com/fetalalcohol

#31 Days To FASDay – Write a poem


Write a poem and speak out!

I have a dream …

That one day little children will not be born with brain damage because of the alcohol they were fed before they were even borm.

I have a dream…

That one day persons with inivisible disabilities will not be treated second-class citizens, but will be able to participate in their local communities accepted in their differences

I have a dream…

That one day predators and persecutors will not addionally victimize persons with fetal alcohol. That people will realize it is no joke. That the day – to – day struggle is real and cannot be kissed away, or bandaged or ignored.

I have a dream…

That one day we will see all people as mattering.

On September 9, 1999, Liz (age 13)
and Jodee Kulp spoke out about the
realities of FASD. 

As my daughter, Liz Kulp said,

“You can’t be handicapped
if you are born like that. 
You just are.”



And this beautiful poem by 

Faceless

By Jennifer Woodward
Peering into a shattered mirror, I try to find myself,
However, all I am is faceless.
I gave up searching because I am always lost.
You lost when you took away my mirror,
My only hope of learning, and living.
Why can you not fix me?
Oh, right how could I forget you did this to me?
I am trying to get over it, over you,
But finding broken pieces of my heart lying
Around me, reminding me of being not whole.
Looking at me in my mirror only leaves me scared and confused.
I cannot see me,
I am faceless.
The world does not see me,
They see a title.
Help me find myself,
Why must I grow knowing I am faceless?
$B!! (B
The face of FASD is sometimes faceless, silent as the world goes by not knowing that we exist. I want you to look me in the eyes and not shut me out, not forget about me. I am here. Maybe you need to look in your mirror.
$B!! (B
Written by: Jennifer Woodward
(Please use and give full credit to Jennifer) FASDay

Join 

#35 Days To FASDay – Invocation


FASDay Invocation & Poem

(This beautiful and inclusive prayer was written and delivered by Sister Eileen Power at the Toronto observance, and has been updated. It’s freely available for anyone in the world who wants to use it. If you use it, please credit Sister Eileen Power, and mention that she is a teaching sister of the Congregation of Notre Dame in Toronto.)

by Sr. Eileen Power, CND

O Great Spirit, Creator of the Universe, we gather on the ninth minute of the ninth hour of the ninth day of the ninth month in the (first year of the New Millennium).
Our connection with our whole world is made visible in a special way today.
People in every time zone gather, as we gather, to change our world.
By our coming together and our working together, we will make the world better.
Accept our prayers with all who are praising you this very moment and with all who will gather today.
As we begin (this millennium), we are filled with hope,
O Ever-Creating God,
that in the circle of life,
in the cosmos, in the womb,
in our hearts,
your hope goes round,
your strength goes round,
your power goes round,
your love goes round and
our hearts and spirits are joined in a new birth.

We gather to intensify our awareness of the fragile beauty of life from the first moment of conception, of the privilege of the nine months of pregnancy, and of our resolve to help all children and adults with fetal substance disorders to lead happier and more fulfilling lives.

All of our words, gestures and hopes of today:
Our silence and our bells,
Our dance and our reflection,
Our words and our drums,
Our children and our knots,
Our lullabies and our resolve,
All of our words, gestures and hopes of today,
Are powerful reminders that life is your gift to us.
May the drumming of our hearts, echoing the drum of the heartbeat of the universe, be the sound of your tender love.
May the knot of our connections be ever firm. And may this special moment on this special day continue to mark the beginning of change, for mothers, for fathers, for all children and for those yet-to-be, and for all of us who join in spirit today around this unique planet, so beautiful, so fragile, so large and yet so small. Together, we are family.

“The Integrity of Hope” (optional)
This is a warm and positive way to end your event, particularly if it is read by a birth mother or person living with FASDs.

The Integrity of Hope
by Michael Kami, 1993

Just as the gentle flutter of a butterfly’s wing
Can change the path of a hurricane
So the gentle beat of a child’s heart
Can change the destiny of the world.
Children are our future and our hope.
Only they determine humanity’s progress.
We must protect all children.
We must feed all children.
We must educate all children.
We must love all children.
They are we and we are they,
In a joint journey to a better future!

Happy Independence Day – Possibilities for FASD

Happy Independence Day to a courageous and wonderful daughter may the dreams of your heart and mind be realized.

Liz wrote the poem below in 2008 and in 2012 she truly is independent and come to terms with life with the challenges of Fetal Alcohol Spectrum Disorders

Today is not independence day, but someday it may be true.

The only person I want to be committed, God, is to you.
Alcohol stole my being, before I was even born
Alcohol took my heart and mind, before the early morn
Alcohol stole my first mother, and my father at her side
Alcohol took my young adult self, on a roller coaster ride
I hate what it has taken
Even though it is so true
But we stand united together to fight and not to lose
Thank you God for all you have done!

COMMITTED TO GROW

From Liz

Mom, don’t you understand that I am committed with rules and regulations that if I don’t obey they will increase my stay, my time, my life will never be my own. I am to participate and comply and obey and yet because they cannot get my medications filled it can be my demise – once again – and I will not let that happen because of medication. I did that once because I did not understand, but now I do. I lost my life and my will to live not understanding my medication and what it can do, that it can curl my fingers and toes and scrunch up my stomach so I cannot eat if the helping pills are wrong in dose or type so what I thought could help can hurt. I cannot unravel myself again. I have worked too hard to rebuild from nothing.

Yet without the medications to sleep how will I not pace, how without sleep will I participate in groups and activities the next day. You wonder why I worry and and am full of anxiety – it is my life they take – when I cannot take my perscription because it is unavailable. And I have heard it before, that they understand, but they dont’t. They will judge me. They always do. On behaviors I may be unable to deal with and so I would rather risk fighting to get what I need than lose what I have gained.

I have been taught to be compliant – med compliant. To obey the hospital where they taught me how, and when, and how much, to mould my mind to even and without this prescription filled I cannot be – the me – they desire and want for me to be free.

Red tape and government rules I cannot scale without your help. I need a conference call between my doctor, and you, and the pharmacy. I will even pay for the meds myself to remain compliant. How can I prove myself if I cannot have the tools I need to do the job they require?

I am writing lyrics again mom, for the silent voices of fetal alcohol, I will fight the fight.

A Pit Bull With Lipstick

From Liz

Sometimes everyone needs an advocate
Mom, you know what they call you?

You’re a
pit bull with lipstick
and that’s pretty funny because
I wear the lipstick
and you never do
You train dogs
but you raise poodles.

I guess me and the poodles
need a pitbull
with lipstickto guide
and show us the way.
and not put up with
our silly billy prancing
but work to keep us
calm and maintained
secured through
the strength of caring.

You’re a pit bull with lipstick,
and I know that is true
because I have seen you
march upto a gangster
and neck hold the leader
against the wall to explain
in no uncertain terms why
claiming points for virgins
is not cool.

You’re a pitbull with lipstick
and I know that is true
because I have seen you
alpha dog stare down
the most feared of all
who feared you enough
to call his father for advice
Whose father thanked you

You’re a pitbull with lipstcik
and I know that is true
because you growl seldom
you don’t have to
You’re presence changes
hearts and minds to make
better decisions.

I laughed when I heard you
called a pitbull with lipstick
but I know it is true .
And if I got to chose
another mother –

I would have to choose you!