#5 Days To FASDay – Fetal Alcohol Awareness Month

Write a PSA!
Or use one that already exists –

September is Fetal Alcohol Awareness Month – so share this wonderful PSA with friends – or take a look at some of the other great PSA’s online – most of the people working with FASD Awareness willingly share –

This was created by a 2009 high school graduate in a tiny rural KY county – he’s got real talent, and I’m so grateful to him for taking the time to do this. Please feel free to pass it on – I want Parker and his fabulous PSA to get a lot of views today!!

Happy FASD Awareness Day from Kentucky!
Laura Nagel

http://www.youtube.com/watch?v=k_USXRi8zt8

#8 Days To FASDay – Write a letter to the first lady

How to Write a Letter to 

First Lady Michelle Obama


Dear First Lady Obama
let me tell you about FASD

As part of International FASD Awareness Day, please join us in this easy, free activity to help raise awareness of FASD at the highest levels of our government.

This idea originated with Tami Eller, a member of our local FASD Council.
Cheri Scott, FASD Family Support Project
Stone Soup Group
www.stonesoupgroup.org

If you would like to write a letter to First Lady Michelle Obama there are certain steps you need to follow. While you may feel comfortable writing letters to your friends and family this letter needs to be formal and concise. Please follow these steps to correctly send the First Lady a letter.

________________________________

Dear First Lady Michelle Obama…

Let me tell you about FASD

International FASD Awareness Day Letter Writing Campaign

Did you know that First Lady Obama reads 10 letters each night written by everyday Americans?
Imagine if every letter the President read was written by someone whose life is impacted by Fetal Alcohol Spectrum Disorders.
If everyone affected by FASD writes to the First Lady prior to 9/9 then the probability of her opening even one letter regarding FASD is incredible.
The more letters, the higher the probability that all ten letters she reads will be written by those affected by FASD.

  • Are you a parent of a child with FASD, are you an adult with FASD?
  • Does your sibling have FASD?
  • Do you teach a child or an adult with FASD?
  • Are you a grandparent of a child with FASD?

For everyone person born affected by prenatal exposure to alcohol, everyone who loves that individual lives are also affected.

Join us in educating our First Lady regarding the most prevalent of all birth defects: Fetal Alcohol Spectrum Disorders.

Join us in asking our First Lady to ring a bell at 9:09 am on September 9, 2009 to recognize the importance of Nine Months of an Alcohol Free Pregnancy.

Tell your story of how Fetal Alcohol Spectrum Disorders have affected yourself and those you love.

Send First Lady Obama a letter to at:
First Lady Michelle Obama
The White House
1600 Pennsylvania Ave NW
Washington, DC 20500

Send First Lady Obama an email by filling out the form at:
http://www.whitehouse.gov/contact

Talking Points

* The Facts:
* Fetal alcohol exposure is an international and national crisis
* Prenatal exposure to alcohol causes permanent brain damage
* Prenatal exposure to alcohol is the leading cause of mental retardation
* Fetal Alcohol Spectrum Disorders are 100% and easily preventable – simply no alcohol consumption during pregnancy
* Fetal Alcohol Spectrum Disorders are a life long disability – from cradle to grave
* More babies are born with Fetal Alcohol Spectrum Disorders than Autism Spectrum Disorders or Downs Syndrome
* There is no safe amount of alcohol to drink during pregnancy
* It is estimated that more than half of the prison population is affected by FASD
* Prenatal exposure to alcohol costs the United States millions of dollars a year to provide services to individuals affected by a FASD
* Early identification and intervention has huge impacts on the reduction of mental health concerns and behaviors resulting in legal intervention
* Even with early identification and intervention,individuals with a FASD will need to lifelong supports
* The Daily Realities of Living with Fetal Alcohol Spectrum Disorders

As a Parent:
* Struggles with you have raising your child with FASD
* Struggles you have explaining the invisible brain damage to others who deal with your child
* Struggle finding appropriate services for your child
* The lesson you have learned in your journey of raising a child affected by FASD
* Your dreams for your child

As an Adult affected by FASD
* Struggles you had to overcome in your lifetime
* Strengths and talents you have
* Accommodations that enable you to be successful

As a Profession working with individuals affected by FASD
* What systematically is working for your clients
* What systematically is not working for your clients
* Struggles your clients face on a daily basis
* Struggles you face on a daily basis in obtaining resources for your clients
* What resources are necessary for your clients to be successful
* What needs to happen
* Proclamation by the President of the United States recognizing September 9th as International Fetal Alcohol Spectrum Disorders Awareness Day and the importance of abstaining from alcohol during pregnancy
* Ask him to ring a bell at 9:09 am on September 9 in recognition of the individuals affected by FASD.
* Diagnostic teams in all 50 states to facilitate and identify early diagnosis and intervention
* More resources toward prevention and early intervention

#14 Days To FASDay – Plan a Pregnant Pause!

Host a Pregnant Pause… in your community… at your school… at your government center… get some attentions









How many Pregnant Pauses can we host around the world….

Need some t-shirts to sport a look….
Visit www.cafepress.com/fasdawareness 

#16 Days To FASDay – Trail of Tears – History of FASD

A Trail of Tears
The History of FASD

Peggy Oba, takes us on a trail of the tears of Fetal Alcohol from ancient times to the present.
If you are interested click here

You will see there is nothing new FASDs have been among us since alcohol.

Are we ready to remain sober for our future children?

#17 Days To FASDay – Cheers to all babies

Cheers to all the babies.
May they grow healthy and warm in their special places.

Tonight our family will celebrate a new tradition.

We are baking a large pretzel bread for break-fast tomorrow, the knot in the bread will be a square knot – the bread braided and we’ll be lighting candles in remembrance of all the persons in the world with Fetal Alcohol brain damage while we say a prayer of protection from the alcohol. Our family enjoys this tradition on New Years.

This may be a way we could all celebrate the eve of 9/9

#18 Days To FASDay – Two minute talk

Get a local or national interview – give it a try!
Give a Two Minute Talk
Here’s Teresa Kellerman’s for 09.09.09

Teresa’s Two Minute Talk
(I was asked to share my personal story of raising a child with FAS, and I was limited to just two minutes!)

Hello, I am John’s Mom.

That’s how I am known across the US and around the world. You see, John is famous. Not because he has Fetal Alcohol Syndrome, but because he allows his story to be told around the world, in order to raise awareness about Fetal Alcohol Disorders.

Thirty years ago, a baby was born to an alcoholic mother who did not have the gift of recovery. The baby suffered with birth defects and brain damage. The mother died.The baby came to me as a special needs foster child, one of many I cared for over the years. This baby soon became my own through adoption.

As an infant, John cried all the time, and could not be consoled. He didn’t want to be touched or cuddled, as if he rejected all love. But by the time he was two, he was a happy little guy – hyper, but happy.

Over the years, he has struggled with developmental delays and learning disorders. He had a heart defect that required open-heart surgery. This was traumatic for him and for me. But it was nothing compared to the day-to-day struggle he has with not being able to control his behavior.

John inherited alcoholism from his birth parents. To help him survive addiction, we maintain a drug free home, with no access to alcohol or other dangerous drugs.

John also needs help to survive his Fetal Alcohol disorder. His brain damage causes him to forget rules, to be impulsive, and to have poor judgment. So John requires close supervision at all times. This is has not been easy for me, and it is certainly not easy for John. But with understanding and acceptance, he trusts me to help him stay safe and healthy and happy

I am proud of John, and I am blessed to be his mother. And we are both blessed to be surrounded by loving friends here in Tucson and around the world through the Internet.

We are grateful for the support of the Division of Developmental Disabilities and are happy to share that support with other families through the Fetal Alcohol Resource Center.

#25 Days To FASDay – Information table

FASD (Fetal Alcohol Spectrum Disorder)
Information Table

You may want to have an information table, which can include the FAS Knot, a cash box for donations, and relevant local material.

  • Correctional Service Canada has produced a well-written research report, “Fetal Alcohol Syndrome: Implications for Correctional Service” which is applicable to most English-speaking countries, and is also available in French. It’s available, free, in bulk, from the Research Branch, Correctional Service of Canada, 340 Laurier Ave. West, Ottawa, ON K1A 0P9, or phone Tina Bada at (613) 996-5222, fax (613)996-2867, reslib@magi.com
    It is full of facts and figures about FAS/FAE, relating to the lifespan of the affected individual, and includes recommendations for changes in the criminal justice system, taking into account the needs and disabilities of offenders with fetal alcohol disorders. This report would be particularly useful for members of the media who would like more information on the secondary disabilities of people with FAS, which make them susceptible to getting in trouble with the law.
  • Your committee might consider making various petitions available, and Bonnie Buxton ogrady@axxent.ca can suggest a number which might be appropriate.
  • We particularly like a “declaration” for men to fill out, promising to support their wives, partners, sisters, daughters, and friends in sobriety when pregnant. This declaration was developed by the Lakeland FAS Committee, in northern Alberta, Canada. The complete petition form can be downloaded at www.come-over.to/FASDAY/FathersDec.htm

Encourange Partner Declarations
The partner declaration, in the form of a petition, reads:

“I am aware that alcohol exposure during pregnancy may cause irreversible brain damage to the baby, therefore, I declare that I will support and encourage my partner, friends and family members to be alcohol free during pregnancy.”

FAS fact sheet and educational handouts
There is a file called FASdisk that can be downloaded in its entirety or just selected documents. The FASdisk can be found at http://come-over.to/FASdisk/

Suggested documents include:

#27 Days To FASDay – Host a baby shower

Plan a PARTY!

A PREGNANT PAUSE EVENT or HOST A BABY SHOWER FOR A NEW SOON-TO-BE MOM

Get a group of friends and join together to
support sobriety for a newly pregnant mom.

Need some ideas….

Visit Liz Kulp’s
FunWithoutAlcohol blog for FREE RECIPES

Download some great SPIRIT FREE RECIPES

Host a Non-Alcoholic Drink Mixing Contest with the best drink toasted to the future.

Take a PASS commitment to support a sober pregnancy – offering to find spirit free fun events and support during the tough and joyous moments.

Most of all HAVE FUN and CELEBRATE

Join the
Million Minds March to Build Better Baby Brains
Raise the Standard
Zero 4 Nine

Amazon.com Widgets

#28 Days To FASDay – An easy FASDay Plan

AN EASY FASDay Plan
Yes! You and one friend can do something!

Easy Plan – The Foolproof FAS Day Formula
Sit down with paper and pen. If you have one or two other key people to work with, print up copies of this manual, and invite them to join you. Give them some time to read it, and then answer the following questions:

  • Who is chairing this event?
  • Who can we count on to help out?
  • What kind of help can they give us?
  • Who do we know will want to attend?
  • Potential attendees — what other people and organizations in the community do we want to reach? (Start with interested friends and family members, and professionals –doctors, lawyers, teachers, etc. – that you know. Then add people who should be interested: e.g., local municipal, state/provincial and federal politicians, agencies with an interest in FAS, school personnel, etc.)
  • How many people can we reasonably expect to attend?
  • Will we require child care?
  • Where should we hold this event?
  • Who are our best local media contacts to promote this event and the FAS issue?

1. Confirm location.
Once you’ve decided how many people are likely to attend, choose your location. Try to find a reasonably-sized meeting room with comfortable seating, and a convenient area to serve coffee, tea, juice, and snacks.
2. How to Obtain a FAS Day Proclamation
If you want civic and state FAS Day proclamations, find out the appropriate name to write to, and do this immediately. You’ll find a boiler-plate letter plus sample proclamations in this document. (Note: Canada’s provincial governments are not likely to issue proclamations.)
3. Planning the Video Premiere — Plus
The program is a simple one, but you’re going to need to make some choices.
Who will be M.C.? Choose the most articulate person in your group, or try for a local personality who could be sympathetic to your cause – e.g., a TV or radio broadcaster or local entertainment figure.

  • Will you use the Invocation, and if so, who will read it?
  • Will you ask your mayor or a municipal counsellor to read the Proclamation?
  • How will you observe the worldwide “Minute of Reflection” at 9:09 a.m.? e.g., will someone ring a bell nine times?
  • Or will you say a prayer, sing a song, have someone play a musical instrument, or have simple silence?
  • Will you have a keynote speaker following the video, and if so, who?
  • Or will you have a panel discussion? Your panel could include a birth parent, a foster or adoptive parent, an articulate survivor of FAS/FAE and a professional (teacher, doctor or nurse, psychologist or social worker, knowledgeable lawyer or judge, etc.)
  • Will you add music to the mix – possibly a live musician?
  • Would you like to close with the poem, “The Integrity of Hope,” by Michael Kami? And if so, who will read it?

4. Invitations and flyersWe’ve enclosed a sample invitation and 2 sample flyer/posters. Ask your committee members to come up with names of people to invite, and make a master list, which can be used in 2001. To save on postage, you may want to e-mail and fax many of your invitations, but make sure to follow up with a personal phone call. The invitation contains a RSVP: whose number will invitees call?
5. Breakfast Food and Drink
Easy does it. Muffins and/or bagels, cheese or cream cheese optional, possibly some cut-up melon or citrus fruit, coffee, tea and fruit juice, cream/milk and sugar. Possibly a local retailer or coffee shop may be willing to make a donation. If you’re tight for cash, possibly a local service club or church will help. Will you need storage or refrigeration or help setting up tables? Do you have enough electric coffeemakers?
6. Other equipment
Make sure your video equipment is adequate well in advance of Sept. 9.

  • Is your VCR working?
  • Is your TV set or monitor large enough for the size of group you expect?
  • If you’re expecting two dozen people or more, you may need two or more monitors hooked up to one VCR: this can be done easily with a splitter. Most audio-visual specialty stores can show you how it’s done.
  • If more people than you expect turn up, simply hold two screening sessions. One group snacks and chats while the other group watches the video. Then they trade places.
    Your alternative is to rent a video projector and screen from a company specializing in video display or presentation rentals. This will cost about $250-$300 per day, and you will need to darken the room. Some colleges and universities have this equipment in screening rooms.

7. Media RelationsYou’ll find a sample media release, ready for you to personalize with local information. Make a list of all of the members of the media you would like to reach, particularly those whom you know personally. You should also prepare a list of individuals who are knowledgeable about FAS, and willing to talk to the media. These might include participants on your panel – parents, people with FAS, and professionals. The media release can be faxed, but make sure you have a person who will make follow-up phone calls. You will also need a media contact for any members of the press, radio or TV who want to know more.
8. OtherBells and carillons around the world will be ringing nine times at 9:09 a.m. in the international Bell Concordance, to remind the world that during the nine months of pregnancy, a woman should not consume alcohol. If there is a church bell in your community, you may want to speak to the minister or priest, to ask if it is rung manually. If so, we suggest you photocopy the material from the FASworld Report regarding the Bell Concordance, or download and print it from the website http://www.come-over.to/FASDAY/manual.htm , and invite the church to join in. If you live in a city which is lucky enough to have a carillon, get the name of the carillonneur and do the same. Gerald Martindale, carillonneur at Toronto’s Metropolitan United Church geraldm@planeteer.com> is building on last year’s concert of international lullabies and would be pleased to share this with other international carillonneurs.

  • Make sure you have a guest book easily accessible as guests enter or leave. It would be useful to have someone stationed to remind people to sign the guest book and hand out FAS Knots as your guests arrive.
  • The FAS awareness symbol, the FAS Knot can be easily made for about 8 cents each. They can be given away, sold for about $2-3 each, or you can simply have a cash box available for donations. Complete information on the FAS Knot can be found at www.come-over.to/FASDAY/manual.htm
    FAS Knots and the guest book can be placed on an information table, with other available material. The table can also include petitions your group wishes to support.

For suggestions for both U.S. and Canadian petitions, e-mail Bonnie Buxton at ogrady@axxent.ca.
For suggestions on posters and printed material you can download yourself, check out the website
http://come-over.to/FASdisk/

#29 Days To FASDay – How to make a FAS Knot

TIE SOME FASKnotsand Pass Them Around Town or School

The FAS Knot – A Symbol for Our Time
We have been pleased by the enthusiasm that volunteers from New Zealand to Arctic Alaska and Canada’s northern territories of Yukon and Nunavut to South Africa have expressed for our unique, wearable symbol, the “FAS Knot.” Each FAS Knot can be easily made in about a minute, for less than ten cents, and can be used as a fund-raiser ($2-$5 each) or given away as reminders of the work we all do to help prevent FASD.
This piece of knotted cord was designed in memory of Abel Dorris, 1968-1991, whose brief and poignant life resulted in the groundbreaking 1989 book about Fetal Alcohol Syndrome, “The Broken Cord,” written by his father, Michael Dorris, 1945-1997.
The broken cord may refer to the umbilical cord, the spinal cord, the nervous system, the cord between the generations, or the cable on an elevator. Michael Dorris wrote that if we back off on our children with Fetal Alcohol Syndrome or Fetal Alcohol Effects (i.e. Alcohol-Related Neurodevelopmental Disorder), they will sink and crash like an elevator once the cable is snapped.
Years later, a loving community around the world reconnected the broken cord, and the FAS Knot is our symbol. The cord is tied in a square knot, sometimes called a reef knot, the favored knot for reconnecting a broken line or cord. The knot is stronger than the cord itself, and cannot be broken or snapped.
To make the FAS Knot, we suggest an eight-inch piece of 3/16″ white cord, available in most hardware stores for a few cents per foot. You make a circle approximately the size of your thumb, then tie right over left and under; left over right and under. It should look like two loops intertwined. (Volunteers in Germany and New Zealand use a thinner cord, and make a more discreet knot. The choice is up to you.)
By choosing a cord instead of a ribbon, we are separating ourselves from all of the other campaigns. We are not just another cause trying to raise money – we represent those millions of individuals and their families who have gone unrecognized, unidentified, neglected on this continent and throughout the world.
The circle symbolizes the womb, a baby’s head, the human brain, the earth. And we, a planet-size network of people who care about people living with FASD, are the knot that will make them whole. If women did not drink in pregnancy, FASD would be totally eliminated.
Our long-range goal is to rename this small piece of cord, “The FAS Not!”
The FAS Knot lapel pin is a more recent innovation and can also be used for fund raising. Many groups resell the pin for $5 or $6.
The pin is available for the low cost of C$3/pin for orders of 25 or more. Shipping is free for orders of 100 or more. The pin is white enamel with a faux gold edge and is approximately 1.8 cm wide. The FAS Knot lapel pin is a registered trademark of FASworld Canada. The lapel pin may not be replicated, copied or incorporated into any other design without specific written permission from FASworld Canada.
The original FAS Knot was designed by Bonnie Buxton and Brian Philcox, and is an official symbol of FASworld. You can find step-by-step photos above. We encourage groups supporting FASD endeavours to use it for promotion or fund-raising, and ask only that you notify us before doing so.

E-mail us at info@fasworld.comHow to Make a FAS Knot

THE FAS KNOT STORY

“A threefold cord is not quickly broken.”
–The Bible, Ecclesiastes IV, 10

In 1999, volunteers from New Zealand and South Africa to Nunavut used the FAS Knot as a symbol of our worldwide campaign to inform the world about Fetal Alcohol Syndrome and related disorders.
This piece of knotted cord was designed in memory of Abel Dorris, 1968-1991, whose brief and poignant life resulted in the groundbreaking 1989 book about Fetal Alcohol Syndrome, The Broken Cord, written by his father, Michael Dorris, 1945-1997.
The broken cord may refer to the umbilical cord, the spinal cord, the nervous system, the cord between the generations, or the cable on an elevator. Michael Dorris wrote that if we back off on our children with Fetal Alcohol Syndrome or Fetal Alcohol Effects, they will sink like an elevator once the cable is snapped. Ten years after Dorris’s book, a loving community around the world reconnected the broken cord, developing the FAS Knot as our symbol.
Each knot can be made easily and cheaply in less than a minute. The cord is tied in a square knot, sometimes called a reef knot, the favoured knot for reconnecting a broken line or cord. The knot is stronger than the cord itself, and cannot be broken or snapped. You may want to sell the knots for $2-$5, or ask for donations.
Volunteers in the U.S. and Canada generally use an eight-inch piece of 3/16″ white cord, available in most hardware stores for a few cents per foot. Volunteers in New Zealand and Germany have made smaller, more discreet FAS Knots, using thinner cord. Make a circle approximately the size of your thumb (possibly smaller if you use a thinner cord), then tie right over left and under; left over right and under. Using a straight pin or safety pin, pin this to your lapel or other garment with the loop above and the knot below.
Step-by-step photos of the FAS Knot may be seen on the website at www.come-over.to/FASDAY/manual.htm
We have chosen a cord instead of a ribbon, to separate ourselves from all of the other campaigns. We are not just another cause trying to raise money — we represent those millions of individuals and their families who have gone unrecognized, unidentified, neglected on this continent and throughout the world.
The circle symbolizes the womb, a baby’s head, the human brain, the earth. And we, a planet-size network of people who care about people living with FAS, are the knot that will make them whole. FAS is totally preventable. We must create a society in which everyone recognizes that there is no lower threshold for drinking in pregnancy. Our long-range goal is to rename this small piece of cord, “The FAS Not!”
The FAS Knot was designed by Bonnie Buxton and Brian Philcox, trademark pending.

Copy for FAS Knot Scroll (optional)
(You may want to print a one-page sheet, roll it up in a scroll, and tuck each one inside the loop of a FAS Knot. The sheet can contain information about the program, and also includes this information about the Knot.)

THE FAS KNOT
This piece of knotted cord was designed in memory of Abel Dorris, 1968-1991, whose brief and poignant life resulted in the groundbreaking 1989 book about Fetal Alcohol Syndrome, “The Broken Cord,” written by his father, Michael Dorris, 1945-1997.
The broken cord may refer to the umbilical cord, the spinal cord, the nervous system, the cord between the generations, or the cable on an elevator. Michael Dorris wrote that if we back off on our children with Fetal Alcohol Syndrome or Fetal Alcohol Effects, they will sink like an elevator once the cable is snapped.
The circle symbolizes the womb, a baby’s head, the human brain, the earth. And we, a planet-size network of people who care about people living with FAS, are the knot that will make them whole. FAS is totally preventable. We must create a society in which everyone recognizes that there is no lower threshold for drinking in pregnancy. Our long-range goal is to rename this small piece of cord, “The FAS Not!”