#40 Days To FASDay – Press Releases – Get Latest Data


Begin to Prepare Your Media Release Ideas for International FASDay – Get your media strategy started 



Don’t forget your other public places to share

(Jeff Noble has some great ideas) at 

  • blogs 
  • Facebook
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  • twitter
  • Google plus
  • community events calendar 
  • church bulletins
  • school and association newsletters 

Suggested Media Release for Canada (should fit on single page):

For Immediate ReleaseContact:
(contact person’s name)
(contact person’s phone number)
(use actual date)
(contact person’s e-mail address)
(Name of your organization)

Fights FAS: International Fetal Alcohol Syndrome Day Video Premiere, Sept. 9
“Our house was in turmoil from the time he got up until the time he fell asleep, probably about ten o’clock – and then I would crawl into bed, totally exhausted, and cry myself to sleep every night because I felt like such a failure,” says Guelph’s Chris Margetson, parent of a son with FAS, in a compelling new Ontario-produced video.
The 25-minute video, “Different Directions: Understanding Fetal Alcohol Syndrome,” will be offered, along with an informal breakfast, when (Name of your organization) marks International FAS Awareness Day on September 9 at 8:45 a.m., at (location), and observes the worldwide “Minute of Reflection” at 9:09 a.m.
“We’ll be joining parents and professionals around the world in building awareness about Fetal Alcohol Syndrome,” says (name and position of spokesperson). “On this second annual FAS Awareness Day, people from Nunavut to New Zealand will participate. On the ninth minute of the ninth hour of the ninth month, we ask the world to remember that during the nine months of pregnancy, a woman should not drink alcohol.”
(name of your city or town) will be among many Canadian communities to use FAS Day to launch the new video, produced by Ontario’s North for the Children and Toronto’s Breaking the Cycle with the assistance of Health Canada.
The video focuses on two children with FAS and their mothers: 5-year-old Brenda, and her adoptive mother, Kim Meawasige, both of aboriginal ancestry; and young adult Joe and his birth mother Chris Margetson, of non-native background. Both Meawasige and Margetson work with FAS professionally, and bring to their work compassionate understanding of the struggle faced daily by children with FAS – and their families.
In one of the more touching moments in the video, Meawasige, adoptive mother of four children with FAS/FAE, bursts into tears. “Knowing how many kids are lost, either killed or living on the street with FAS and FAE, it scares me…One of the reasons I adopted (my children) is because I know that …no matter how weird our family is, we’re family and we’ll be there for them.”
Following the screening of the video, (what else is on your program?) All are welcome. For more information, call (contact name and number).

Suggested Media Release for U.S. (should fit on single page):

For Immediate Release
Contact:
(contact person’s name)
(contact person’s phone number)
(use actual date)
(contact person’s e-mail address)
(Name of your organization)

Fights FAS: International Fetal Alcohol Syndrome Day Video Premiere, Sept. 9

The 35-minute video, “FAS: Everybody’s Baby” (that focuses on teenagers who struggle with the effects of alcohol in their lives) will be offered, along with an informal breakfast, when (Name of your organization) marks International FAS Awareness Day on September 9 at 8:45 a.m., at (location), and observes the worldwide “Minute of Reflection” at 9:09 a.m.
“We’ll be joining parents and professionals around the world in building awareness about Fetal Alcohol Syndrome,” says (name and position of spokesperson). “On this second annual FAS Awareness Day, people from Alaska to New Zealand will participate. On the ninth minute of the ninth hour of the ninth month, we ask the world to remember that during the nine months of pregnancy, a woman should not drink alcohol.”
(name of your city or town) will be among many U.S.communities to use FAS Day to launch the new video, produced by the U.S. Dept.of Education.
Promoting zero tolerance for alcohol, tobacco, and drugs during pregnancy, the video is particularly aimed at problem teenagers who are at risk for both unplanned pregnancy and substance abuse. The film concludes with a reflection from adolescents on what parenting is all about, how it begins in the womb, and the responsibilities of the mother and father. “It’s an excellent film for teenagers,” says Teresa Kellerman of Tucson’s FAS Community Resource Centre, “and it will make an impact on viewers of all ages.”
Following the screening of the video, (what else is on your program?) All are welcome. For more information, call (contact name and number).

#43 Days To FASDay – Write some letters


Write a Letter to the President or Your Country’s Leader! Write to your mayor or the university president in your community

Write a Letter to the President
or Your Country’s Leader!

This is a great summer family fun project…
Everyone can “make some noise” –
artwork, postcards and note cards are great from kids

Dear President Obama,
Let me tell you about fetal alcohol spectrum disorders or FASD,
…..go kids you can do it!!!

As part of International FASD Awareness Day,
please join us in this easy, free activity
to help raise awareness of FASD at the highest
levels of our government.

This idea originated with Tami Eller, a member of our local FASD Council.
Cheri Scott, FASD Family Support Project – Stone Soup
http://www.stonesoupgroup.org/

A knowledge of the path cannot be substituted for putting one foot in front of the other.
M.C. Richards

Dear President Obama…

Let me tell you about FASD…

International FASD Awareness Day Letter Writing Campaign.

Did you know that President Obama reads 10 letters each night written by everyday Americans? Imagine if every letter the President read was written by someone whose life is impacted by Fetal Alcohol Spectrum Disorders.

If everyone affected by FASD writes to the President prior to September 9th then the probability of him opening even one letter regarding FASD is incredible. The more letters, the higher the probability that all ten letters he reads will be written by those affected by FASD.

  • Are you a parent of a child with FASD?
  • Are you an adult with FASD?
  • Doesyour sibling have FASD?
  • Do you teach a child or an adult with FASD?
  • Are you a grandparent of a child with FASD?

For everyone person born affected by prenatal exposure to alcohol, everyone who loves that individual lives are also affected.

Join us in educating President Obama regarding the most prevalent of all birth defects: Fetal Alcohol Spectrum Disorders.

Join us in asking President Obama to ring a bell at 9:09 am on September 9 to recognize the importance of Nine Months of an Alcohol Free Pregnancy.

Starting the week of September 1 send a letter to President Obama telling him your story of how Fetal Alcohol Spectrum Disorders have affected yourself and those you love.

Send President Obama a letter to at:
President Obama
The White House
1600 Pennsylvania Ave NW
Washington, DC 20500

Must be mailed by August 17th!
OR
Send President Obama an email by filling out the form at:
http://www.whitehouse.gov/contact

Talking Points

The Facts:

  • Fetal alcohol exposure is an international and national crisis
  • Prenatal exposure to alcohol causes permanent brain damage
  • Prenatal exposure to alcohol is the leading cause of mental retardation
  • Fetal Alcohol Spectrum Disorders are 100% and easily preventable – simply no alcohol consumption during pregnancy
  • Fetal Alcohol Spectrum Disorders are a life long disability – from cradle to grave
  • More babies are born with Fetal Alcohol Spectrum Disorders than Autism Spectrum Disorders or Downs Syndrome
  • There is no safe amount of alcohol to drink during pregnancy
  • It is estimated that more than half of the prison population is affected by FASD
  • Prenatal exposure to alcohol costs the United States millions of dollars a year to provide services to individuals affected by a FASD
  • Early identification and intervention has huge impacts on the reduction of mental health concerns and behaviors resulting in legal intervention
  • Even with early identification and intervention, individuals with a FASD will need to lifelong supports

The Daily Realities of Living with Fetal Alcohol Spectrum Disorders
As a Parent:

  • Struggles with you have raising your child with FASD
  • Struggles you have explaining the invisible brain damage to others who deal with your child* Struggle finding appropriate services for your child
  • The lesson you have learned in your journey of raising a child affected by FASD
  • Your dreams for your child

As an Adult affected by FASD

  • Struggles you had to overcome in your lifetime
  • Strengths and talents you have
  • Accommodations that enable you to be successful

As a Profession working with individuals affected byFASD

  • What systematically is working for your clients
  • What systematically is not working for your clients
  • Struggles your clients face on a daily basis
  • Struggles you face on a daily basis in obtaining resources for your clients
  • What resources are necessary for your clients to be successful

What needs to happen

  • Proclamation by the President of the United States recognizing September 9th as International Fetal Alcohol Spectrum Disorders Awareness Day and the importance of abstaining from alcohol during pregnancy
  • Ask him to ring a bell at 9:09 am on September 9 in recognition of the individuals affected by FASD.
  • Diagnostic teams in all 50 states to facilitate and identify early diagnosis and intervention
  • More resources toward prevention and early intervention

The Million Mind March starts with a single step.

Daring to Live – He Won The Million Minds Race Without Ever Taking A Step

Jim Grimm never joined our Million Mind March, he died yesterday quietly in “his” home. He was 42 and he Dared to Live with Cerebral Palsy that captivated him to rejoice in a life few live so strongly. He never uttered a word, yet he profoundly and joyfully touched the lives of all who came to know him. He was an inspiration to all who met him.

Born with cerebral palsy and unable to communicate verbally or move of his own volition, Jim turned his severely isolating lifelong disability into a gift of connecting deeply with others. The community of Chisago Lakes rallied around the family while Jim was in preschool, little Jim went to school and graduated with his class in 1986. He was a friend to all. Independent and strong spirited, he moved into his “own” home as an adult and was surrounded by care givers who became his “Friends.” He climbed the first Liberty Ridge.

His Award Winning “The Heart’s Alphabet – Daring to live with Cerebral Palsy.” Won National Mom’s Choice Gold Award for Adult Memoirs. The Heart’s Alphabet is Jim’s self-told story, painstakingly spelled out, letter by letter, with the assistance of an interpreter is a tale of personal perseverance, a tribute to loving families, and-most of all-a testament to the possibilities that lie within each of us.

  • Jim ran the race of life wearing a wheelchair.
  • Jim taught life living independently hurdling barriers other placed before him.
  • Jim climbed Liberty Ridge – he scaled the impossible as a man
  • Jim spoke letter by letter with his tongue – his words and life live on in his book
  • Jim loved life, people, concerts, vacation, travel, sports & his dogs.

His dogs was how I was reunited with Jim last year. Jim was looking for a dog and he knew what “he” wanted. After visits with my large size puppies, he clicked with his tongue “No.” For Jim his No has always meant no, and his Yes has moved him forward. He never settled for I Can’t. For Jim has always been able to work with his family, love with his family, and do with his family and the community he became a part of – He expressed his needs – as a child and as a wholesome and loving man.

His parents, his sister and brother and the community he embraced can rejoice in a life lived with courage and strength. He won the race, he finished his life and I am sure on both feet this man raced into heaven – his job well done! For Jim death was his first step – and knowing him his body free he can now run and jump at last.

“If I rise on the wings of the dawn,
If I settle on the far side of the sea,
even there your hand will guide me.
Your right hand will hold me fast.”
Psalm 139:9

His website is http://theheartsalphabet.com/

May his family be blessed in their remembrances.