Day 47 of 99 Days to FASDay

Caregiver curriculum #FASD – passing this on to Red Shoes Rock team

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Day 47 of 99 Days to FASDay

As we approach the halfway point of our 99 day journey to FASDay, I wanted to share an on-line resource I found for caregivers. There are some great programs and courses that are available at a cost, either on-line or in person, but this one focuses on caregivers (mainly for those in child welfare, but it is also applicable to families and anyone wanting a basic understanding of Fetal Alcohol Spectrum Disorder) and it is free.

It is also self-study. I don’t know about you, but as a caregiver I found it very difficult to commit to anything that had a set date attached to it. For those just beginning their journey into the world of FASD or need a refresher, this course isn’t too intense and you set your own pace. It can also be used freely as a training module (with proper credit).

The purpose of this curriculum…

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Day 44 of 99 Days to FASDay

Counting the costs of #FASD

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Day 44 of 99 days to FASDay

Day 43 was about the cost of FASD in the general population. Today – Day 44 is about the cost of FASD in the child welfare system in Canada. The information below is from:

Canadian Children and Youth in Care: The Cost of Fetal Alcohol Spectrum Disorder

Svetlana Popova, Shannon Lange, Larry Burd, Jürgen Rehm

Popova, S., Lange, S., Burd, L. et al. Child Youth Care Forum (2014) 43: 83. doi:10.1007/s10566-013-9226-x

The study was designed to: (1) estimate the number of children in care with FASD by age group, gender, and province/territory and (2) estimate the associated cost of children in care with FASD in Canada in 2011.

An estimation of the cost of FASD for the Canadian child welfare system is central to describing the extent of its impact on this population, the cost to society, and for evaluating the potential benefits of FASD prevention programs.

Furthermore, the current…

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Day 42 of 99 Days to FASDay

Prevalence of FASD around the World

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Day 42 of 99 days to FASDay

Keeping with our International theme from yesterday, today’s info-graphic reports on world-wide prevalence of Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorder (FASD). The information comes from the report titled:

Estimation of national, regional, and global prevalence of alcohol use during pregnancy and fetal alcohol syndrome: a systematic review and meta-analysis.

by Svetlana Popova, Shannon Lange, Charlotte Probst, Gerrit Gmel, Jürgen Rehm 

This report was published in January 2017 by The Lancet Global Health. Copyright © The Author(s). Published by Elsevier Ltd. You can download the full report by clicking the link above. It is an Open Access article under the CC BY-NC-ND license.

According to the authors:

We aimed to estimate the prevalence of alcohol use during pregnancy and of FAS among the general population, by country, WHO region (ie, African region [AFR], Eastern Mediterranean region [EMR], European region [EUR], region of the Americas [AMR], South-East Asia region…

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Day 38 of 99 Days to FASDay

Sharing another Parenting Children with FASD program

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Day 38 of 99 Days to FASDay

Over the next few days of 99 Days to FASDay we will continue with sharing information about some early intervention programs which help improve outcomes for children with FASD and their families and caregivers.

It needs to be stated again, the sharing of this information is not an endorsement. Every attempt has been made to share only information from reputable sources. Links are provided for you to conduct your own research.

Today’s information comes from a Report: Prenatal Alcohol Use and FASD : Diagnosis, Assessment and New Directions in Research and Multimodal Treatment, 2011, 64-107, Chapter 4: An Innovative Look at Early Intervention for Children Affected by Prenatal Alcohol Exposure by Heather Carmichael Olson and Rachel A. Montague.

Over the next few days we will share three programs highlighted in the above report which the authors note are scientifically validated parenting interventions that seem especially promising for FASD intervention from a neurodevelopmental…

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Day 39 of 99 Days to FASDay

Check out a scientifically proven parenting method to help children with FASD

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Day 39 of 99 Days to FASDay

Continuing our three-day focus on some scientifically validated parenting intervention programs that hold promise for FASD intervention, today we highlight: The Family Check Up program.

The information provided below is taken directly from the Report:  Prenatal Alcohol Use and FASD: Diagnosis, Assessment and New Directions in Research and Multimodal Treatment, 2011, 64-107, CHAPTER 4: An Innovative Look at Early Intervention for Children Affected by Prenatal Alcohol Exposure by Heather Carmichael Olson, and Rachel A. Montague. You can find the report by clicking here .

The Family Check-Up is a positive parenting intervention that focuses on preventing problem behavior and negative interaction styles in families at high psychosocial risk.

The goal of this intervention model is to support parents in a family-centered and ‘ecologically-focused’ manner. Like the FMF model (outlined yesterday, Day 38), the Family Check-Up also uses motivational interviewing and strengthens parents’ use of positive behavior support strategies.

This model…

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Day 34 of 99 Days to FASDay

Is #FASD a trend or is it real?

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Day 34 of 99 Days to FASDay and today’s myth is about FASD being a trend. I don’t know about you, but this is not a “trend” I would wish on anyone. Why do people feel this way? I always say, unless you live the life we live with FASD you have no business making judgments. Science has proven FASD is real. Those that live with FASD know it is real.

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I encourage you to visit last years Red Shoes Rock posts tagged FASD is Real. You can’t tell these people their FASD isn’t real.

The maiden did receive an ADHD and ODD diagnosis when she was young – so I know this to be a fact that misdiagnosis does occur. Remember when ADHD was a trendy condition?

As time goes on, hopefully we will see more acceptance and less denial.

Thanks to the FASD Network of Southern California for this…

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Day 36 of 99 Days to FASDay

Is there a learning plateau with #FASD?

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Day 36 of our 99 day journey and this myth is about plateau of learning. While research has suggested that skill levels for people with FASD vary (see graphic below), I believe Grade 4 (through my own experience with the maiden) is definitely when things began to “fall apart” at school for her.

fasd-chrono-vs-develp

After the shift from the primary grades of 1, 2 and 3, with FASD not recognized, and the teaching style not adapted sufficiently for her, it was a disaster in the making. The sad part is, despite all the challenges she had at school, she was always an eager learner. She always wanted to bring homework home – even if there was no homework assigned!

I have said it before, and I will say it again, as more is known about FASD, I sure hope the school systems get onboard and start providing the type of education our…

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