MEET REBECCA – I am an adoptee who searched and found.I live with Fetal Alcohol Syndrome. I was diagnosed by a pediatric geneticist in Albanu New York. I WROTE A book about my journey: https://www.amazon.com/Tenacity-Rebecca-Tillou-ebook/dp/B01F31JYC
MY STORY – My name is Rebecca, and I was diagnosed with Fetal Alcohol Syndrome at 34 years old. Diagnosed with a pediatric geneticist who read my adoption story, read my struggles, and shed light on my “quirks.” FAS does not define who I am. It has lit a fire inside me though, and I have started on a path to Educate to Erase #FASD.
I am a woman, a mother, a wife, a full time employee at a job for 11 years. I am a runner. I am a friend. I am so many things, and I have FAS. I am NOT FAS. After my diagnosis in November 2014, I started looking for educational opportunities. I have had the pleasure of speaking on a panel of adoptees, birth moms and adoptive moms at the MOFAS conference in 2015. I got to tell my story and be inspired by others stories of struggle and hope. I was asked to tell my story to undergraduates at The College of Saint Rose in Albany, NY. I co-presented about FASD at the Adoptive and Foster Family Coalition in Albany, NY in 2016.
My campaign of educating keeps going. I recently published a memoir on Amazon Kindle. The title is Tenacity. (https://www.amazon.com/Tenacity-Rebecca-Tillou-ebook/dp/B01F31JYC ) It relays my adoption journey, and my journey through the ins and outs of FAS struggles growing up. I also have a Youtube video about my life with FASD. Another tool I hope many will use to educate themselves, teachers and doctors about FASD, and that there is hope for those living with an FASD. In the near future I will have a Blog up and running. It will tell my tales of “FAS” moments I have lived through. Many are funny, some are sad, and some are strategies I have found helpful in my daily life to keep calm and move along. So come along with me on my journey. Come and educate to erase FASD!
STRENGTHS: Intuition into subtle emotions, writing poetry running and being a mom
STRUGGLES: Impulsivity, handling money, understanding personal space, staying on topic
WISH: Educate to Erase #FASD
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