The Maiden and Managing Money

A delightful and REAL read from our favorite Maven and Maiden… keep posting and welcome back on you 900 km Red Shoes Rock Journey

our sacred breath

The Maiden became an adult in the world when she turned 18 in August. And with that comes a whole new set of challenges, difficulties and exciting new possibilities. However it also comes with new learning curves for both of us. Understanding money and math can be a challenge for many people, including those with FASD.

She has difficulty understanding money, as has been the case for as long as she has had an allowance. I’ve tried to give her the freedom to spend it on what she wants. She needs to learn that when it is gone, it is gone. She has little self-control and is not able to save. No matter a dollar, ten dollars or a $100 – if she has it she will spend it. And not always wisely.

She has been approved for ODSP (Ontario Disability Support Program). Every month she receives financial assistance. We agreed that…

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Day 6: Red Shoes Rock (across Canada) to Stop FASD

Thank you for your trek of 900 miles across Canada and sharing your RedShoesRock journey with all of us…

our sacred breath

No travelling today for the red shoes.

Red Shoes Cold Lake
We are in Cold Lake, Alberta to attend a memorial service for a close family friend of my boyfriend.

I don’t know the family, but it was a very moving service and this woman sounded like she was a wonderful woman. Many spoke of her love of life and people. She accepted everyone and focused on the good in everyone. For those of us with children or family members affected by FASD, we need more people in our worlds like Kay. Many of us live lives filled with judgement and rejection.

The service also reminded me how fleeting life is. Although this woman had a full and long life, a study published a few months back did not hold much hope for people with FASD.

FASD Life Expectancy

While the statistic is disturbing and at first frightening, the Virtual Relay of the Red Shoes Rock to…

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34 – A Number Key to FASD Awareness

Hey = Savanna Pietrantonio, Val L Bate, Taliona Mai Hajisalad, R.J. Formanek and all you wonderful others – You are PROOF we can make this happen differently. We got our 90 RUNNERS we did this thing guys

FASD: Learning with Hope

Copy of Life Expectancy for Person With Fetal Alcohol Syndrome-2By @FASD_Mum

34

I can’t stop thinking about this number.  I try to shake it.  I walk away from the computer.  I divert my attention.  I try to block it out.  But eventually, there it is again.  Stark.  Cold.  Flawed, perhaps.  But it cannot be ignored.

According to a March 2016 study based on data from Alberta, Canada, this is the average life expectancy at birth of a baby born with Fetal Alcohol Syndrome.  It means that statistically, using standard scales used to estimate these things, the professionals assume that half of the people with Fetal Alcohol Syndrome will live longer than 34 and half will live less than that.  This is a limited figure, a guess.  It deals with only one part of the Fetal Alcohol spectrum.  Quite probably the people you and I know with FAS will live much longer than this number.  We shouldn’t dwell here for…

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Day 4: Red Shoes Rock (across Canada) to Stop FASD

Keep up the journey

our sacred breath

Our fourth day was a little more relaxed in terms of both hours and kilometres driven. After three days of 9 hour and 900 km driven daily we only travelled about 6 hours and just over 600 kilometres from Brandon, Manitoba to Saskatoon, Saskatchewan.

RSR Saskatchewan

It was cool today so my travelling companion left his sandals in the suitcase, and I noticed he had red laces! Not red sneakers, but it’s a start.

RSR red laces

The maiden continued her fourth day of participation. She spent 9 minutes walking and playing with our dog Franklin.

image

We adopted Franklin in May and he is still learning how to walk nicely on a leash. And at a very strong 83 lbs, he is too much for either the maiden or the crone to walk – so he has to make do with exercise in the yard while I’m away.

Not only is this the longest I…

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Day 3: Red Shoes Rock (across Canada) to Stop FASD

our sacred breath

Today 957 km driven. We finally made it out of Ontario!


Long day though as we stopped for an impromptu tour CFB Shilo.


Not a lot to report tonight. These red shoes are very tired! Spread a little FASD awareness at the Base to the young gunner who allowed this picture!
The Maiden Day 3 RSR
I am proud to say the maiden (my daughter) did 9 laps around the yard with my dog this morning (she couldn’t join me on the road trip because of school – her last year!) but she is doing her own Red Shoes Rock participation back home. I’m so proud of her – I’m sure she will be helping spread the message as she returns to school before September 9, 2016.

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Day 2 Red Shoes Rock (across Canada) to Stop FASD

900 miles down – all the best and blessings on your Red Shoes Rock #FASD journey

our sacred breath

Today was another 9 hour driving almost 900 kms. We left Sault St Marie this morning and made a brief stop in Wawa for a photo with the giant Canada Goose:

Canada Goose Wawa

The day ended in Thunder Bay after stopping to see the Terry Fox memorial statue.

Terry Fox

If you want to see what other people are doing for Red Shoes Rock check out the Facebook page: https://www.facebook.com/RedShoesRock/

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Red Shoes Rock to Stop FASD

Follow the red shoes across Canada….

our sacred breath


Today begins my third year participating in the Red Shoes Rock to Stop FASD awareness campaign. From September 1-9, I will be travelling approximately 900 km a day from my home in Ontario to Quadra Island, B.C. wearing my red shoes across this great country of Canada. This is a poignant journey for me as I am taking my Dad’s ashes to scatter them in the place he loved best. I will arrive on the last day of my 9 day participation which will also be FASDay.

As I left this morning, the maiden joined me on a .9 km walk. While I’m away she will be participating each day. I am pleased she wants to raise awareness and show her support. She doesn’t very often talk about her FASD, but as she turned 18 this summer I think she is starting to understand that it is okay to share…

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90 Real People Real Lives #FASD – About us

RJ Formanek and Jodee Kulp began #RedShoesRock Stop FASD in 2014 with a 30 day challenge beginning on August 10 – our dream was to stop the stigma and build visibility – That first event was successful with over 10,000 new viewers and families and children had fun sharing their shoes. 

In 2015, we added 30 days by using that time to prepare for community grassroots events for International FASDay – September 9. We shared ideas and tips of what people could do big or small to make a difference. This marked the 16th celebration of FASDay to build awareness and we are grateful to Brian Philcox, Bonnie Buxton and Teresa Kellerman for being the brave souls who initiated this dream on 9.9.99 at 9:09.

This year we wanted to not just celebrate, create visibility and build a voice we wanted to share stories and empower persons who live with the challenges of FASD daily. We have had a great time. We have met incredible people. People from Australia, Germany, USA, Canada, UK, Italy and South Africa have already run…

Please encourage our runners – add kind comments – they were courageous to step out for Red Shoes Rock International Virtual Relay Race – meet everyone at realpeople.realmindz.com

FASD IS REAL … SO AM I

I’ve been following and participating in the Red Shoes Rock awareness campaign for the last two years. This year, the third, a new awareness feature has been developed which has to be the best one yet.


The campaign started June 12, 2016 and runs until September 9, 2016 (which is International FASDay) as an International Virtual Relay Race on Facebook and other social media channels. Each day one person who is living with FASD is featured.

Red Shoes Rock International Relay Race is a collaborative effort by RealMindz, Better Endings New Beginnings, It’s Mackie’s World and Parenting Complex Children.


Check out the Real People Real Mindz website FASD IS REAL for profiles of each of the individuals featured.

You can also follow the campaign on Facebbook:

https://www.facebook.com/RedShoesRock/

or right here on WordPress at Jodee Kulps’s blog the Lighter Side of FASD:

https://jodeekulp.wordpress.com

It is both heartwarming and heartbreaking to read the successes and struggles. As a parent raising a child with FASD it is also inspiring and gives me hope for my daughter’s future.

A lonely world…

fasdmom

I think at times it is really hard to realize that my world is different.  I don’t know how it became that way really.  I mean we wanted kids and all of our friends were having kids.  We became different then as we didn’t.  I guess that was the beginning.  Then when we fostered to adopt that was different and the behaviors we dealt with were different.  We were told to “give them back” so many times.  Kind of like sneakers that didn’t fit right.  Wow that really cut us off as well I don’t believe in throwing a kid away.  It started out slow but all of a sudden we weren’t invited to events…then we weren’t even invited to family events.  It started to show and it hurt but I tried to look at it as well  not everyone can handle our brood but really no one tried.

Our…

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