Day 23 of 99 Days to FASDay

Let’s use our Red Shoes and Stomp our Stigma concerning #FASD

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Day 23 of 99 days to 9.9 FASDay

Continuing with the suggestions to change our language around FASD, Day 23 of 99 Days to FASDay focuses on parents and caregivers. I don’t know about you, but I’m 50/50 on these terms. I’ve likely used one or both of the first two terms. I don’t think I’ve ever used the last term. Have you ever used these terms?

What does the Project say?

The term ‘admitted’ (to alcohol use) implies that this is a confession of wrongdoing and has a moral judgement overtone. The term ‘confirmed’ is neutral.

Using alcoholics or women who choose to drink:

Research tells us that women do not intentionally seek to harm their unborn children.

Some women may be unaware of their pregnancy when drinking heavily. Some women have addictions and mental health challenges and find quitting extremely difficult despite pregnancy.

Some women have abusive partners who pressure them to drink while pregnant.


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Day 21 of 99 Days to FASDay

Language makes a difference – what you say matters – #FASD – Thanks Yvonne

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Day 21 of 99 days to 9.9 FASDay

I am very excited about the information I will be sharing over the next 7 days of the 99 Days to FASDay countdown. Day 21 – 27 will focus on the words we use when talking about FASD, people with FASD and women who use alcohol during pregnancy.

I found these suggestions in a Language Guide on the Manitoba FASD Coalition website under a project called Looking After Each Other.

In May 2014, a diverse group of Manitobans came together to talk about the relationship between stigma and Fetal Alcohol Spectrum Disorder (FASD) and their shared passion to end it. They began to create a vision for a province where people with FASD and women who have used alcohol during pregnancy are fully accepted and their dignity is protected.

In order to achieve its purpose of promoting dignity the project has developed three pillars, each with a corresponding subcommittee.  Each…

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Day 19 of 99 Days to FASDay

Slow things down for #FASD for better communication

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Day 19 of 99 days to 9.9 FASDay

Day 19 of 99 Days to FASDay and it’s time to slow things down for people with FASD. One area you can really make a difference with those with FASD you support is stopping and waiting patiently for a response and action. Give your child or client time to process what you said and respond to your request. We live in a fast placed world – but this is one time you should just take a few moments to breathe and wait. Without finger tapping, foot stomping or demanding immediate compliance.

In searching for more information on processing speed I came across an article written by Rene Denfield, which not only addresses this characteristic but explains some others.

Does the client have the dreaded “flat” affect? Be aware that people with FASD, in particular, function more strongly in verbal skills than in processing. Their verbal abilities, for instance, might be…

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Day 18 of 99 Days to FASDay

Don’t Sweat The Small Stuff – #FASD

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Even though today’s FASD strategy tip or NB approach is huge, I won’t offer much to illustrate as it’s self-explanatory.  It is a difficult one for parents of any child to follow. We want to instill values in our children – the values we hold near and dear – but your child is a unique individual with his or her own needs, wants and desires. Your job is to teach him/her, but also to let him/her be free to develop in his/her own way. Give your child the freedom on things that really don’t matter in the long term. Is not brushing her hair such a big deal?

Before I adopted the maiden a co-worker said to me: “If your daughter wants to wear a hat to bed, let her.” In other words, “don’t sweat the small stuff” and give your child some control over his or her own life.

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Day 16 of 99 Days to FASDay

Lying or Confabulation – do you know the difference? #FASD

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Day 16 of 99 days to 9.9 FASDay It’s all about the NB approach!

Today’s NB tip is all about confabulation. I must admit I do not think I had ever heard the word confabulation before I adopted the maiden. I learned rather quickly though that she wasn’t lying – she was confabulating:

[k uhn-fab-y uhley-sh uhn]
1. the act of confabulating; conversation; discussion.
2. Psychiatry. the replacement of a gap in a person’s memory by a falsification that he or she believes to be true.

According to Teresa Kellerman in an article on the Come Over To website:

Making up stories and telling tall tales is a normal part of being a typical 4-5 year old. Scientific research done by Dr. Edward Riley shows that many kids with FASD have an arrested social development that stops at about the level of a 4 to 6 year old. Is it…

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Day 15 of 99 Days to FASDay

What approach works in supporting individuals with #FASD

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Day 15 of 99 days to 9.9 FASDay It’s all about the NB approach!

What is Executive Functioning?

The executive functions are a set of processes that all have to do with managing oneself and one’s resources in order to achieve a goal. It is an umbrella term for the neurologically based skills involving mental control and self-regulation.

The information below is an excerpt from an excellent article I found on LD Online outlining the key skills involved when we talk about executive functioning.

The list was complied by Drs. Gerard A. Gioia, Peter K. Isquith, Steven C. Guy, and Lauren Kenworthy:

  1. Inhibition – The ability to stop one’s own behavior at the appropriate time, including stopping actions and thoughts.
  2. Shift – The ability to move freely from one situation to another and to think flexibly in order to respond appropriately to the situation.
  3. Emotional Control – The ability to modulate emotional responses by bringing rational thought to…

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Day 13 of 99 Days to FASDay

How to chamge the negative associations with #FASD – Thank you

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Day 13 of 99 days to 9.9 FASDay

Welcome to Day 13 in our 99 day journey of all things FASD. If you are superstitious the number thirteen might not be a positive association for you. Starting today and over the next week or so, we are going to try to change negative associations of behaviour to an understanding of FASD as a brain-based physical disability that requires accommodations – just as we make accommodations for people with physical challenges. It’s all about our approach. Diane Malbin coined the phrase, trying differently, not harder, and came up with the NB approach and has taught it to many parents, caregivers and professionals. While the brief information we will be sharing over the next little while won’t make anyone an expert in such a short time, it may change the way some people see FASD and the approach to building on people’s success.

The information we share over the…

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12 of 99 #FASD Facts – Learn More Strategies

Following along with tips and strategies, one of the most difficult things for me to “wrap my head around” was how children with FASD are so similar, and yet how very different they can be because their brains are wired differently. I also learned the “usual” parenting strategies do not work for our children. The […]

via Day 12: 99 Days to FASDay — our sacred breath

Day 11: 99 Days to FASDay

As more research happens, outcomes for families and children will improve. #FASD together we are unstoppable #redshoesrock

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Day 11 of 99 days to 9.9 FASDay

Day 11 of the countdown to FASDay and it’s time to switch gears. Today’s tip, and the next series of tips will focus on some positive things that will help people who are wondering just how to we help people living with FASD. Many people who are already supporting people may know most of these, but there may be a few new ones, or for people just starting out on their journey or others who think there is no hope – there is hope and help out there.

In the journey for myself and the maiden we have had a few really great people support us – and a few not so great. In terms of the above graphic, the one that made a difference for the maiden is the loving, nurturing and stable environment that I provided – but that was not until she was adopted at 8 years…

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